Knowing how close we are to getting her home makes the days feel a little longer. Yet not long enough. She’s so ready to get moving.
They capped her lines at noon! Why? All of her meds have been moved to oral. Mom asked them to put the NG Tube in so we can get her home.
Look at that smile. Avery had a great full day with Mom & Dad back at the hospital. She’s 1/2 way to her eating goal for the day and still has 2 more feedings scheduled. We’ve been able to add 2oz of formula each day and she is tolerating them well. Her TPN will be…
After 14 long days, 3 days of antibiotics, and 2 negative tests, look who’s back at the hospital! Papa handed over the baton to Mom.
Another day in the hospital, another day playing with Papa. This building set was one of her favorite Christmas gifts.
Her expressions nowadays may not always show it, but Papa said Avery had a great day! They played in the floor. Danced to her songs.
The GI Team was incredibly encouraged by what they saw during today’s Endoscopy. THERE WAS NO SIGN OF GAVE!
They’re still only doing the endoscopy (no colonoscopy) and plan on possibly spraying the stomach again and cauterizing any “problem spots.”
When we say Avery is putting in the work, she’s PUTTING IN THE WORK. She has Occupational, Physical, Music, and Speech Therapy.