Seeing that smile on her face is everything.
Mom said she woke up in a great mood today; as you can see here.
Dancing, smiling, and playing with sister.
Instagram Reel: https://www.instagram.com/p/CZvAhohAdtS/
THIS is the Avery we saw every day before transplant.
Yes, we know sheโll get there again, and itโs days like this that give us the greatest hope.
Weโve often wondered how much her transplant journey will change her. Especially emotionally.
She had quite a rough go and we know she carries emotional trauma from it.
Yes, her (physical) therapists are working through things on their end, but itโs the emotional side we wonโt see until later.
Until then, weโll keep celebrating days like this one.
As well as the days where she keeps all of her food down, has just enough diapers, and gains a bit of weight.
In addition to the days where she just wants to rest, doesnโt quite feel like eating, or doesnโt wear a smile.
Every day with her is a gift we donโt take for granted.
And, yes, as many have said, sheโs running a marathon here; not a sprint.
You got this, Avi!
Youโre doing such an incredible job.