BMT DAY +116

Seeing that smile on her face is everything.

Mom said she woke up in a great mood today; as you can see here.

Dancing, smiling, and playing with sister.

Instagram Reel: https://www.instagram.com/p/CZvAhohAdtS/

THIS is the Avery we saw every day before transplant.

Yes, we know sheโ€™ll get there again, and itโ€™s days like this that give us the greatest hope.

Weโ€™ve often wondered how much her transplant journey will change her. Especially emotionally.

She had quite a rough go and we know she carries emotional trauma from it.

Yes, her (physical) therapists are working through things on their end, but itโ€™s the emotional side we wonโ€™t see until later.

Until then, weโ€™ll keep celebrating days like this one.

As well as the days where she keeps all of her food down, has just enough diapers, and gains a bit of weight.

In addition to the days where she just wants to rest, doesnโ€™t quite feel like eating, or doesnโ€™t wear a smile.

Every day with her is a gift we donโ€™t take for granted.

And, yes, as many have said, sheโ€™s running a marathon here; not a sprint.

You got this, Avi!

Youโ€™re doing such an incredible job.

Similar Posts