The good news is Avery was unattached from her pole for a while today!

The bad news is that as she’s coming off all those meds, she’s experiencing a lot of uncomfortable weaning symptoms.

She’s had a low-grade fever most of the day.

Her heart rate has been pretty high.

And she has thrown up multiple times.

We’ve stopped and started her feeds throughout the day accordingly.

They’re stopped right now after the last time she got sick and we’re waiting to see if they’re going to restart them.

All signs are pointing to weaning off the meds as the culprit. She had a small dose of morphine earlier this evening to see if it would help.

Her heart rate came down some, so it definitely looks like that might be the issue.

Otherwise, she’s trying to play and dance when her tummy is feeling okay. But, dancing often leads to nausea again.

Hopefully, as she continues to flush out all of the drugs from her ICU stay, she will be feeling better again soon.

One more bit of good news, while Avi was unhooked from everything (except her feeds), we were able to take her for a walk around the unit and she loved it!

She hasn’t been able to venture outside her room in a while, so it was a nice change of scenery for her.

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