Want to know the only word Avery has picked up signing so far? DONE. She is so over all of it. As soon as the nurses walk in the room, she puts both hands up and signs, “done.”
Avery started Anti-thymocyte globulin (ATG) which is supposed to help fight off GVHD (graft vs host disease) after her bone marrow transplant.
Chemo sucks no matter how you look at it. With babies, they have no way of communicating what hurts. Are they nauseous? Do they have a headache? Is it bone or joint pain?
Today we received the heartbreaking news that our friend, Tiago, earned his wings on Tuesday. Tiago was only 3 weeks older than Avery and her first friend.
The day got started early with Avery’s Central Line insertion in her chest. They’ve also had a revolving door of doctors, nurses, therapists and other transplant-specific care team members.
Avery’s results ALL came back MRD negative! This means there’s NO CANCER in her little body. We were so excited to hear this news today.
First, because I know it’s a question on a lot of our minds: We still have no results. Truth be told, we didn’t expect any today, but were hopeful.
Avery is now doing all she can to be more mobile. She’s always been a “booty scooter” rather than a crawler. It’s fun to see her doing “normal” baby stuff.
This girl! She’s growing up so fast right now. Not only is she trying to stand up and walk, but today she said her first official word!