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Our Happily Ever Avery
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Our Happily Ever Avery

Diagnosis

It took a couple days for us to get an official diagnosis. Learn what initially raised alarms, the tests she had, and how we learned about her Pre B-cell Acute Lymphoblastic Leukemia.

PICC Line with NICU Team

PICC Line with NICU Team

PICC Line Attempt #1

PICC Line Attempt #1

First Day of Chemo

First Day of Chemo

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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
  • Additional Resources
  • How You Can Help
  • FAQs

ourhappilyeveravery

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Sep 25

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Every moment is a new adventure with Avery. Every new discovery. Every new feat she accomplishes. Each new milestone met. Every new day with her. She’s fought for each and every one. “Whatever you do, hold on to hope! The tiniest thread will twist into an unbreakable cord. Let hope anchor you in the possibility that this is NOT the end of your story; that change will bring you to peaceful shores.” ~Unknown #oureveravery . . . . #morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss

Every moment is a new adventure with Avery.

Every new discovery.

Every new feat she accomplishes.

Each new milestone met.

Every new day with her.

She’s fought for each and every one.

“Whatever you do, hold on to hope! The tiniest thread will twist into an unbreakable cord. Let hope anchor you in the possibility that this is NOT the end of your story; that change will bring you to peaceful shores.” ~Unknown

#oureveravery
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#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss ...

ourhappilyeveravery

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Sep 24

Open
When she won’t let you “really” put her hair up, so you do what you can. 💇🏼‍♀️ We’ll have to try to cut her hair soon. 🎗️🎗️DAY 23🎗️🎗️ The most common childhood cancers are Leukemia, Brain & Spinal Cord Tumors, Neuroblastoma, Lymphoma, Rhadomyosarcoma, Retinoblastoma, and Bone Cancer. Read through the slides to find some of the most common symptoms each. The sole reason for concern with Avery was a swollen lymph node. 🙌🏼It was Mom’s attention to detail that helped us catch Avery’s cancer. Sometimes it truly pays to trust your gut. #oureveravery . . #morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss

When she won’t let you “really” put her hair up, so you do what you can.

💇🏼‍♀️ We’ll have to try to cut her hair soon.

🎗️🎗️DAY 23🎗️🎗️

The most common childhood cancers are Leukemia, Brain & Spinal Cord Tumors, Neuroblastoma, Lymphoma, Rhadomyosarcoma, Retinoblastoma, and Bone Cancer.

Read through the slides to find some of the most common symptoms each.

The sole reason for concern with Avery was a swollen lymph node.

🙌🏼It was Mom’s attention to detail that helped us catch Avery’s cancer.

Sometimes it truly pays to trust your gut.

#oureveravery
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.
#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss ...

ourhappilyeveravery

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Sep 23

Open
Another 👓 picture because I think she’s just the cutest. Her sweet face. Her hair flips. All of it. 🤓 (I seriously have a whole series of these because she was too cute with Papa’s glasses) 🎗️🎗️DAY 22🎗️🎗️ I know you’re probably tired of the numbers, but we’re in the home stretch. 🎤 I want to make sure we share as many as possible while we have the proverbial mic this month. Keep sharing! Keep advocating! 💛And, as always, THANK YOU for simply caring. #oureveravery . . #morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss

Another 👓 picture because I think she’s just the cutest.

Her sweet face.

Her hair flips.

All of it.

🤓 (I seriously have a whole series of these because she was too cute with Papa’s glasses)

🎗️🎗️DAY 22🎗️🎗️

I know you’re probably tired of the numbers, but we’re in the home stretch.

🎤 I want to make sure we share as many as possible while we have the proverbial mic this month.

Keep sharing!

Keep advocating!

💛And, as always, THANK YOU for simply caring.

#oureveravery
.
.
#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss ...

ourhappilyeveravery

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Sep 21

Open
🎈HAPPY BIRTHDAY, MOM🎈 Time to make some wishes, mom. Happy cake day! Enjoy. 🎂 A Cancer Parent’s Poem: ⛈️ In life's storm, we stand so strong, Parents to a fighter, brave and small. Through trials and tears, we march along, In the darkest night, we give our all. 👶🏻 Tiny hands, a heart so pure, Yet cancer's shadow, we endure. Sleepless nights, but love endures, Our baby's courage, it reassures. 💛 Tribulations test our very core, But love and hope, we're fighting for. In unity, we'll heal and soar, Triumph's light, we'll embrace once more. 🌟So let this tale of strength resound, For parents with love, forever bound. In the face of fear, we'll stand our ground, With our baby's spirit, victory is found. #oureveravery . . #morethan4 #kidswithcancer #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #fightleukemia #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #parentofawarrior #parentingthroughcancer

🎈HAPPY BIRTHDAY, MOM🎈

Time to make some wishes, mom. Happy cake day! Enjoy. 🎂

A Cancer Parent’s Poem:

⛈️ In life`s storm, we stand so strong,
Parents to a fighter, brave and small.
Through trials and tears, we march along,
In the darkest night, we give our all.

👶🏻 Tiny hands, a heart so pure,
Yet cancer`s shadow, we endure.
Sleepless nights, but love endures,
Our baby`s courage, it reassures.

💛 Tribulations test our very core,
But love and hope, we`re fighting for.
In unity, we`ll heal and soar,
Triumph`s light, we`ll embrace once more.

🌟So let this tale of strength resound,
For parents with love, forever bound.
In the face of fear, we`ll stand our ground,
With our baby`s spirit, victory is found.

#oureveravery
.
.
#morethan4 #kidswithcancer #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #fightleukemia #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #parentofawarrior #parentingthroughcancer ...

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All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
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Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
  • Remission
  • BMT {Rebirth Day}

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