Diagnosis

It took a couple days for us to get an official diagnosis. Learn what initially raised alarms, the tests she had, and how we learned about her Pre B-cell Acute Lymphoblastic Leukemia.

Anytime Avery is feeling upset (sad, mad, frustrated, tired, etc.), it all seems to go away once she steps outside.

She LOVES being outdoors.☀️

If she’s inside, she will find a place where the sun is shining through the windows to sit and play.

She seems to be energized by the sun. Always has.

(I compare her love for the sun to “Timothy Green” – without the ending) 🍃

Anyways, she’s been in such a great mood lately.

Laughing. Playing. Babbling. Growing so much both physically and developmentally.

We stand in awe at how far she’s come in the last year.

Holding her it’s easy to feel the difference.☺️

Every day is a new adventure with her and we’re simply enjoying the ride.

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Papa and I had a rare night alone with her last night so Mom & Dad could take care of Ry.

Big Sis has strep and the doctor wanted her to get a good 24 hours worth of antibiotics in before Avi came home.

So, please send healing thoughts to Ry. She’s feeling a bit better, but it was a rough weekend for her.🥺

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors ...

ourhappilyeveravery

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Mar 24

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✨LIFE’S WHAT YOU MAKE IT ✨

“Memories your making
You frame inside in your heart
The middle of a nowhere
Is a somewhere you can start

So go and write your song
The world will sing along

Oh-oh, oh-oh
Life’s what you make it
Oh-oh, oh-oh
It’s yours for the taking

Go and write your own song
All the world will sing along
When you find your melody
We’ll join in, in harmony”

Go and write your own song, Avi! 🎶

You deserve the world. 💛

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #lifeswhatyoumakeit ...

ourhappilyeveravery

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Mar 23

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New favorite spot.🌳

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything.

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment ...

ourhappilyeveravery

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Mar 19

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🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines.

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery
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#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial ...