Hi, Instagram friend! Welcome to our page dedicated to all of our lovely IG followers.

Below you will find the most asked for links and content that you’re looking for without scrolling all the way through our site!

Please use this email for digital gift cards and PayPal: [email protected]

Donating to Venmo? Please click here to go straight to Venmo or find @StaciSalazar on the app. It’s a picture of Ma holding Avery to her chest. Last 4 of phone number: 4367

Cancer Awareness Shirts
Purchase a shirt! All proceeds go towards Avery’s medical funds.
JOIN THE REGISTRY
SAVE A LIFE

JOIN THE REGISTRY!

Please consider saving a LIFE of someone from your heritage with 70 different blood disease like sickle cell or blood cancers like Leukemia.

Just click the button below or simply text everavery to 61474 to join as a committed new Be The Match member, if your age 18-44 and willing to help any patient in need.

BMT

Avery received her bone marrow transplant on October 15, 2021.


CAR-T

After donating 7 million of her own cells, she received CAR-T Therapy on April 19, 2021.


At Home

We cherish every moment of time we have to spend at home with our sweet girl.


🔉LISTEN 🔉

To those that have asked about her “speaking,” have a listen.

She is most happiest on the trampoline when outside.

I tried to capture the sounds she makes.

Yet this is only the tip of the iceberg.

👄 She also “hums” along to her favorite songs and mimics phonetic sounds.

She has begun doing hand gestures to songs.

Plus, she has always communicated with us in other ways that don’t require her to be verbal.

At her last appointment we talked with the doctors about the healing we’re seeing.

We all agreed that she appears to be healing beyond what we can physically see.

It’s a slow and steady process, but she’s getting there.

It’s such a joy to watch her live and learn. Quite literally.

Keep going, Avi! 💪

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #healingjourney

🔉LISTEN 🔉

To those that have asked about her “speaking,” have a listen.

She is most happiest on the trampoline when outside.

I tried to capture the sounds she makes.

Yet this is only the tip of the iceberg.

👄 She also “hums” along to her favorite songs and mimics phonetic sounds.

She has begun doing hand gestures to songs.

Plus, she has always communicated with us in other ways that don’t require her to be verbal.

At her last appointment we talked with the doctors about the healing we’re seeing.

We all agreed that she appears to be healing beyond what we can physically see.

It’s a slow and steady process, but she’s getting there.

It’s such a joy to watch her live and learn. Quite literally.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #healingjourney

When it’s 80°F outside in February, you spend as much time out there as possible.

So after spending the afternoon in our backyard, we decided to take the girls to a new park in a nearby city.

Avery spent much of the time there sensory seeking and taking in all of the sights and sounds—of the sky.😂

In short, it was a good day.

#oureveravery 
.
.
#sensoryplay #sensoryprocessing #sensoryoverload #sensorykids #sensoryplayyourway #sensoryseeking

When it’s 80°F outside in February, you spend as much time out there as possible.

So after spending the afternoon in our backyard, we decided to take the girls to a new park in a nearby city.

Avery spent much of the time there sensory seeking and taking in all of the sights and sounds—of the sky.😂

In short, it was a good day.

#oureveravery
.
.
#sensoryplay #sensoryprocessing #sensoryoverload #sensorykids #sensoryplayyourway #sensoryseeking

Avery has two moods: 
1. laughing at everything 
2. serious about everything 

And she can switch from one to the other in a snap.

Also, these are two of her favorite toys right now.

The FP Linkimals Sloth and her @supersimpleofficial owl. 🦉 

Her new stuffed panda 🐼 is also quickly becoming a favorite as well. 

Oh! Notice anything new? 💇🏼‍♀️

#oureveravery 
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Avery has two moods:
1. laughing at everything
2. serious about everything

And she can switch from one to the other in a snap.

Also, these are two of her favorite toys right now.

The FP Linkimals Sloth and her @supersimpleofficial owl. 🦉

Her new stuffed panda 🐼 is also quickly becoming a favorite as well.

Oh! Notice anything new? 💇🏼‍♀️

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

💅🏼 Styled by Avery 🤩

Each and every day she shows more of her precious personality…

And we just soak it up. 

#oureveravery 
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

💅🏼 Styled by Avery 🤩

Each and every day she shows more of her precious personality…

And we just soak it up.

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

What French fry? 🍟 

Yes, she started eating fries again this week!

And, again, we take any step towards solid food as a win.

Here’s to hoping we can keep trying (and finding) new foods for her to eat once again.

Have a great weekend, y’all!

#oureveravery

What French fry? 🍟

Yes, she started eating fries again this week!

And, again, we take any step towards solid food as a win.

Here’s to hoping we can keep trying (and finding) new foods for her to eat once again.

Have a great weekend, y’all!

#oureveravery

This year’s World Cancer Day’s theme, “Close the Care Gap”, is all about raising our voices to engage our leaders. 

When it comes to cancer, many of us are denied basic care, even though we live in a time of awe-inspiring advancements in cancer prevention, diagnosis and treatment.

😔This is the equity gap – and it’s costing lives. 

DYK?

🎗️Over 350,000 children in low-income countries are missing out on cancer treatment.

📈10 million people died from cancer in 2020.

🌍70% of cancer deaths occur in low-to-middle income countries.

🔬Up to 3.7 million lives could be saved each year through resource appropriate strategies for prevention, early detection and timely and quality treatment.

We must use our voices to help those who are unable to help themselves.

📮Join us this #WorldCancerDay to #CloseTheCareGap and send the Call to Action to your representative: https://www.worldcancerday.org/join-call-to-action

“World Cancer Day has become the most amplified and impactful global platform for all cancer patients and advocates – a platform where we can all make noise, lots of noise, reminding all that we can win the war on cancer.” —HRH Princess Dina Mired of Jordan

This year’s World Cancer Day’s theme, “Close the Care Gap”, is all about raising our voices to engage our leaders.

When it comes to cancer, many of us are denied basic care, even though we live in a time of awe-inspiring advancements in cancer prevention, diagnosis and treatment.

😔This is the equity gap – and it’s costing lives.

DYK?

🎗️Over 350,000 children in low-income countries are missing out on cancer treatment.

📈10 million people died from cancer in 2020.

🌍70% of cancer deaths occur in low-to-middle income countries.

🔬Up to 3.7 million lives could be saved each year through resource appropriate strategies for prevention, early detection and timely and quality treatment.

We must use our voices to help those who are unable to help themselves.

📮Join us this #WorldCancerDay to #CloseTheCareGap and send the Call to Action to your representative: https://www.worldcancerday.org/join-call-to-action

“World Cancer Day has become the most amplified and impactful global platform for all cancer patients and advocates – a platform where we can all make noise, lots of noise, reminding all that we can win the war on cancer.” —HRH Princess Dina Mired of Jordan

Seriously! When did she get so grown up⁉️ (Yes, we spent the day at @childrens. It was check up day)

It’s the jeans, right? 

Not to mention, she is 25th percentile in her height and 88th in weight! 

Her doctors today couldn’t get over how much her hair has grown since they last saw her (in October).

I told them we typically can’t get over it either.

Some weeks it seems to grow an inch from the week before.

It’s so soft, shiny, and strong. 

💪🏼 Just like her!

We were also able to talk about therapy again.

We made sure to tell them that we’ve called all over town—and then some—but have had no luck.

We also made sure to reiterate that she pretty much ONLY eats Cheerios and drinks PediaSure.

🥄 (We can get toddler pouches down her, but only with a syringe; she still refuses a spoon)

Understanding her needs, they are going to press again for therapy.

She is having an eczema flare-up, but nothing beyond that.

Finally, they’re waiting for results from the lab to see if her body is retaining antibodies. 

This is a test that has taken a year to work through, so we’re curious to get those results.

Otherwise, her labs and everything else look great!

Keep going, Avi! 💛

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Seriously! When did she get so grown up⁉️ (Yes, we spent the day at @childrens. It was check up day)

It’s the jeans, right?

Not to mention, she is 25th percentile in her height and 88th in weight!

Her doctors today couldn’t get over how much her hair has grown since they last saw her (in October).

I told them we typically can’t get over it either.

Some weeks it seems to grow an inch from the week before.

It’s so soft, shiny, and strong.

💪🏼 Just like her!

We were also able to talk about therapy again.

We made sure to tell them that we’ve called all over town—and then some—but have had no luck.

We also made sure to reiterate that she pretty much ONLY eats Cheerios and drinks PediaSure.

🥄 (We can get toddler pouches down her, but only with a syringe; she still refuses a spoon)

Understanding her needs, they are going to press again for therapy.

She is having an eczema flare-up, but nothing beyond that.

Finally, they’re waiting for results from the lab to see if her body is retaining antibodies.

This is a test that has taken a year to work through, so we’re curious to get those results.

Otherwise, her labs and everything else look great!

Keep going, Avi! 💛

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Last week was all dark and gloomy, so we enjoyed spending as much time in the sun today as possible!

Not to mention, it was nice and warm all day!

🫧 So, we jumped on the trampoline (black marks on her face are from it), drew with sidewalk chalk (as shown on her pants), played on the swing set 🛝, went to the park, and then came home and caught bubbles in the backyard.

We made sure to soak up as much sun as we could before it gets cold and wet again later this week.

☀️ If the sunshine is out, that’s where Avery wants to be too. 

Just your ordinary toddler hanging out in the backyard with her big sister; getting dirty and having some fun. 

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerplay #bringonthesunshine

Last week was all dark and gloomy, so we enjoyed spending as much time in the sun today as possible!

Not to mention, it was nice and warm all day!

🫧 So, we jumped on the trampoline (black marks on her face are from it), drew with sidewalk chalk (as shown on her pants), played on the swing set 🛝, went to the park, and then came home and caught bubbles in the backyard.

We made sure to soak up as much sun as we could before it gets cold and wet again later this week.

☀️ If the sunshine is out, that’s where Avery wants to be too.

Just your ordinary toddler hanging out in the backyard with her big sister; getting dirty and having some fun.

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerplay #bringonthesunshine

☀️ Wherever you find sunshine pouring into the house, there is where you’ll find Avery.

Fortunately, our dog doesn’t mind sharing his bed with her.

Avery has an ECHO tomorrow morning for a routine check on her heart.

I think people often forget how much long-lasting damage chemo can do to a person’s body.

👶🏻 Especially when it’s a chemo designed for adults but used on babies.

But that’s a story for another day …🎗️

Her heart has always been strong, so hoping for more of the same tomorrow.

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #chemosucks #morethan4

☀️ Wherever you find sunshine pouring into the house, there is where you’ll find Avery.

Fortunately, our dog doesn’t mind sharing his bed with her.

Avery has an ECHO tomorrow morning for a routine check on her heart.

I think people often forget how much long-lasting damage chemo can do to a person’s body.

👶🏻 Especially when it’s a chemo designed for adults but used on babies.

But that’s a story for another day …🎗️

Her heart has always been strong, so hoping for more of the same tomorrow.

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #chemosucks #morethan4