Hi, Instagram friend! Welcome to our page dedicated to all of our lovely IG followers.

Below you will find the most asked for links and content that you’re looking for without scrolling all the way through our site!

Please use this email for digital gift cards and PayPal: [email protected]

Donating to Venmo? Please click here to go straight to Venmo or find @StaciSalazar on the app. It’s a picture of Ma holding Avery to her chest. Last 4 of phone number: 4367

Cancer Awareness Shirts
Purchase a shirt! All proceeds go towards Avery’s medical funds.
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JOIN THE REGISTRY!

Please consider saving a LIFE of someone from your heritage with 70 different blood disease like sickle cell or blood cancers like Leukemia.

Just click the button below or simply text everavery to 61474 to join as a committed new Be The Match member, if your age 18-44 and willing to help any patient in need.

BMT

Avery received her bone marrow transplant on October 15, 2021.


CAR-T

After donating 7 million of her own cells, she received CAR-T Therapy on April 19, 2021.


At Home

We cherish every moment of time we have to spend at home with our sweet girl.


Look at this big girl!

Do you know what this cutie did today?

She added 4 new words + 1 phrase to her verbal repertoire🤗

Every word/phrase today comes from her songs!

Ready for this?

👧🏼 head (while also touching her head)
🐮 cow
🐷 oink
👃🏼 nose

Oh, and my favorite one?

🤟🏼I LOVE YOU🤟🏼

(Thanks to @supersimpleofficial’s Skidamarink)

It was the cutest thing and caught me completely off guard.

I may have shed a tear or two after giving her a big hug.

Now I just need to try to catch her saying it on video because it’s the sweetest sound. 🥹

Keep going, Avi! You’re doing so well. 

#oureveravery
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#toddlertalk #learningnewwords #bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Look at this big girl!

Do you know what this cutie did today?

She added 4 new words + 1 phrase to her verbal repertoire🤗

Every word/phrase today comes from her songs!

Ready for this?

👧🏼 head (while also touching her head)
🐮 cow
🐷 oink
👃🏼 nose

Oh, and my favorite one?

🤟🏼I LOVE YOU🤟🏼

(Thanks to @supersimpleofficial’s Skidamarink)

It was the cutest thing and caught me completely off guard.

I may have shed a tear or two after giving her a big hug.

Now I just need to try to catch her saying it on video because it’s the sweetest sound. 🥹

Keep going, Avi! You’re doing so well.

#oureveravery
.
.
#toddlertalk #learningnewwords #bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

🎥Sorry about the video quality! It was late, she was as sick. But the content was too good to not share! 

If you’ve been here a minute, you know that Avery has been mostly non-verbal ever since her bone marrow transplant—two and a half years ago!

Recently, she has begun trying really hard to talk.

A few weeks ago, her vocabulary consisted primarily of ‘mama’, ‘papa’, and ‘baba.’

But, even though she was really sick last week, she still started saying more words.

Most of them stem from her songs. She loves her songs!

And they seem to be helping her quite a bit with the repetition of sounds and words.

So, last week she added, “quack, quack, quack” 🦆 to her repertoire.

It was the first time we’ve ever heard her use an ‘intentional’ phrase repetitively!

It was BIG NEWS for our family! 🙌

Since then, we’ve also heard her say, ‘brown’, ‘down’, and a couple of other words.

But “quack, quack, quack” is her current favorite.

We just love seeing her make progress.💛

And, yes, we’re still working on speech therapy. The new insurance has already shown to be much more helpful in that process.

Hopefully we find the therapists she needs SOON!

Until then, we’ll just keep doing what we’re doing since it appears to be working for her. 

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #speechdelay

🎥Sorry about the video quality! It was late, she was as sick. But the content was too good to not share!

If you’ve been here a minute, you know that Avery has been mostly non-verbal ever since her bone marrow transplant—two and a half years ago!

Recently, she has begun trying really hard to talk.

A few weeks ago, her vocabulary consisted primarily of ‘mama’, ‘papa’, and ‘baba.’

But, even though she was really sick last week, she still started saying more words.

Most of them stem from her songs. She loves her songs!

And they seem to be helping her quite a bit with the repetition of sounds and words.

So, last week she added, “quack, quack, quack” 🦆 to her repertoire.

It was the first time we’ve ever heard her use an ‘intentional’ phrase repetitively!

It was BIG NEWS for our family! 🙌

Since then, we’ve also heard her say, ‘brown’, ‘down’, and a couple of other words.

But “quack, quack, quack” is her current favorite.

We just love seeing her make progress.💛

And, yes, we’re still working on speech therapy. The new insurance has already shown to be much more helpful in that process.

Hopefully we find the therapists she needs SOON!

Until then, we’ll just keep doing what we’re doing since it appears to be working for her.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #speechdelay

Love having our sweet, happy girl back! 🥰

That sickness last week was a rough one, but she seems to be back to 100%.

She’s playing, babbling, drinking her formula again, and in such a good mood! 

Off to a good start for the week.

Hope y’all are having a wonderful week as well.😊

#oureveravery 
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#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Love having our sweet, happy girl back! 🥰

That sickness last week was a rough one, but she seems to be back to 100%.

She’s playing, babbling, drinking her formula again, and in such a good mood!

Off to a good start for the week.

Hope y’all are having a wonderful week as well.😊

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

It’s been a long week. I was sure today was Friday. 🤦🏻‍♀️

Avery still isn’t back to 100% but she’s doing much better!

Her fever was relentless! It lasted until last night. 🤒 

Two good things that she has started doing include: (1) drinking water out of a (2) straw cup!

Plus, as her appetite was coming back yesterday she wanted more food (toddler pouches) rather than her formula.

So, if there’s a silver lining for her being sick this week, it has helped her try new things. 🤷🏻‍♀️

This hammock swing here? Life saver!

We used it to calm her when necessary, as well as lull her to sleep.

We used it outside during daylight hours and moved it inside every night.

She loves it—and I don’t blame her!🥰

Hopefully tomorrow she feels even better and we can have a good weekend watching her and Ry play together.

💛 Thank y’all for the well wishes this week!💛

#oureveravery

It’s been a long week. I was sure today was Friday. 🤦🏻‍♀️

Avery still isn’t back to 100% but she’s doing much better!

Her fever was relentless! It lasted until last night. 🤒

Two good things that she has started doing include: (1) drinking water out of a (2) straw cup!

Plus, as her appetite was coming back yesterday she wanted more food (toddler pouches) rather than her formula.

So, if there’s a silver lining for her being sick this week, it has helped her try new things. 🤷🏻‍♀️

This hammock swing here? Life saver!

We used it to calm her when necessary, as well as lull her to sleep.

We used it outside during daylight hours and moved it inside every night.

She loves it—and I don’t blame her!🥰

Hopefully tomorrow she feels even better and we can have a good weekend watching her and Ry play together.

💛 Thank y’all for the well wishes this week!💛

#oureveravery

Behind that smile is a miserable little girl.

A 103°F fever landed Avery at urgent care on Sunday. 🤒 

They did all the swabs and everything came back negative.

She was diagnosed with a “viral cold that’s going around” and it is just wearing her down.

Typically she just pushes through; but this one has been rough.

The fever has been going off and on since Sunday and her cough sounds terrible. 😞 

As far as sleep, there’s not much of that happening (especially at night).

She wakes up coughing quite a bit. Plus she doesn’t want to be put into her own bed once we get her settled.

We do have some fun updates though 👀 that I’ll share once we get our girl back to feeling better.

Hoping today is the last of the fever at least.🥺

And, yes—as was asked in our DMs—this is the first time we’ve really seen her this sick since her discharge/medication wean.

That’s actually a pretty good run without being sick!

Fun Fact: We texted her donor about her cold and he (who is hardly ever sick himself) said, “We must have synced immune systems, I’ve been down with a cold or something the past week too.”

Anyways! Hope everyone reading this is feeling well!

#oureveravery
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.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Behind that smile is a miserable little girl.

A 103°F fever landed Avery at urgent care on Sunday. 🤒

They did all the swabs and everything came back negative.

She was diagnosed with a “viral cold that’s going around” and it is just wearing her down.

Typically she just pushes through; but this one has been rough.

The fever has been going off and on since Sunday and her cough sounds terrible. 😞

As far as sleep, there’s not much of that happening (especially at night).

She wakes up coughing quite a bit. Plus she doesn’t want to be put into her own bed once we get her settled.

We do have some fun updates though 👀 that I’ll share once we get our girl back to feeling better.

Hoping today is the last of the fever at least.🥺

And, yes—as was asked in our DMs—this is the first time we’ve really seen her this sick since her discharge/medication wean.

That’s actually a pretty good run without being sick!

Fun Fact: We texted her donor about her cold and he (who is hardly ever sick himself) said, “We must have synced immune systems, I’ve been down with a cold or something the past week too.”

Anyways! Hope everyone reading this is feeling well!

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Jumping into the weekend like…

Love this silly girl!

And she loves to jump.😂

Happy weekend, y’all!

#oureveravery
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.
#toddleractivities #toddlerfun #toddlerhood #toddlercore #toddlerlifestyle

Jumping into the weekend like…

Love this silly girl!

And she loves to jump.😂

Happy weekend, y’all!

#oureveravery
.
.
#toddleractivities #toddlerfun #toddlerhood #toddlercore #toddlerlifestyle

Avery’s check ups used to be anxiety-ridden, but have become less so the further we get out from treatment.

Today she brought her favorite 🐼 along to help her pass the time.

And even though we also brought her favorite book, she thought her panda would be more interested in reading the “stickers” for her lab tubes.🧪 

Whatever keeps her entertained and happy while we wait.

Thankfully, all of Avery’s labs looked great and we don’t come back until October for her 3-yr BMT check up!

It’s crazy to think that it’s almost been 3 FULL YEARS since her transplant‼️

Especially when you also think about the fact that she turns 4️⃣ just a few days later.

But our girl is doing it! She’s continuing to thrive and the BMT team is thrilled with her progress.

Before anyone asks, yes, we talked about therapy again.

Dad’s job switched insurance providers and it went I to effect TODAY!

This means Avery is back on the insurance she had while getting treatment and is so much better!🙌

We told one therapy service that we’d be getting new insurance today and, oh boy, they called at 7:55am to check in with us! 

So, we’re all hoping this means we can find a therapist soon. 🤞

One more fun fact from today’s appointment: Avery weighs 38.4 lbs and is 38.4” tall.

At least she’s proportionate! 😂

#oureveravery
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.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Avery’s check ups used to be anxiety-ridden, but have become less so the further we get out from treatment.

Today she brought her favorite 🐼 along to help her pass the time.

And even though we also brought her favorite book, she thought her panda would be more interested in reading the “stickers” for her lab tubes.🧪

Whatever keeps her entertained and happy while we wait.

Thankfully, all of Avery’s labs looked great and we don’t come back until October for her 3-yr BMT check up!

It’s crazy to think that it’s almost been 3 FULL YEARS since her transplant‼️

Especially when you also think about the fact that she turns 4️⃣ just a few days later.

But our girl is doing it! She’s continuing to thrive and the BMT team is thrilled with her progress.

Before anyone asks, yes, we talked about therapy again.

Dad’s job switched insurance providers and it went I to effect TODAY!

This means Avery is back on the insurance she had while getting treatment and is so much better!🙌

We told one therapy service that we’d be getting new insurance today and, oh boy, they called at 7:55am to check in with us!

So, we’re all hoping this means we can find a therapist soon. 🤞

One more fun fact from today’s appointment: Avery weighs 38.4 lbs and is 38.4” tall.

At least she’s proportionate! 😂

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

For those who’ve been here a while, you know how much we’ve struggled with getting Avery into therapy.

Helping her learn to talk is one thing, but getting her to eat is even bigger.

Before her transplant, she loved to eat anything and everything.

She was left with some oral aversions that have hindered her desire to eat. 

(Most of her nutrition comes from a 🍼protein-rich toddler formula)

Since her transplant, she has only eaten Cheerios chicken nuggets, and fries.🍟 

Sure, it’s typical toddler food, but it’s often a challenge for her to eat these foods.

We started feeding her pouches several months ago, but the only way she would eat them is out of a 20 mL syringe.

This is how we fed her in the hospital and what she’s comfortable with.

She’ll chew on spoons, but refuses to eat from them. 🥄 

So, we keep trying new foods through a variety of  delivery options.

Just over the past few weeks, she began accepting the purée directly out of the pouch!

That’s a pretty big win in our eyes because it shows she is still progressing.

Still healing. Still learning.

Each new win gives us hope for her continued development in terms of milestones. 🙌

Keep going, Avi! 

#oureveravery
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.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerdevelopment

For those who’ve been here a while, you know how much we’ve struggled with getting Avery into therapy.

Helping her learn to talk is one thing, but getting her to eat is even bigger.

Before her transplant, she loved to eat anything and everything.

She was left with some oral aversions that have hindered her desire to eat.

(Most of her nutrition comes from a 🍼protein-rich toddler formula)

Since her transplant, she has only eaten Cheerios chicken nuggets, and fries.🍟

Sure, it’s typical toddler food, but it’s often a challenge for her to eat these foods.

We started feeding her pouches several months ago, but the only way she would eat them is out of a 20 mL syringe.

This is how we fed her in the hospital and what she’s comfortable with.

She’ll chew on spoons, but refuses to eat from them. 🥄

So, we keep trying new foods through a variety of delivery options.

Just over the past few weeks, she began accepting the purée directly out of the pouch!

That’s a pretty big win in our eyes because it shows she is still progressing.

Still healing. Still learning.

Each new win gives us hope for her continued development in terms of milestones. 🙌

Keep going, Avi!

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerdevelopment

It’s National Take Our Kids to Work Day!

When most of the adults in your life work from home, you can celebrate this every day. 💻 

And one of Avery’s favorite places to hang out is in our office.

Her playroom is directly across from it, so she just brings toys in, sits in the floor and plays.

But, her absolute favorite spot?

The dog’s bed underneath our desk.

Not sure our dog appreciates it; but Avery doesn’t care what he thinks. 😂

#oureveravery

It’s National Take Our Kids to Work Day!

When most of the adults in your life work from home, you can celebrate this every day. 💻

And one of Avery’s favorite places to hang out is in our office.

Her playroom is directly across from it, so she just brings toys in, sits in the floor and plays.

But, her absolute favorite spot?

The dog’s bed underneath our desk.

Not sure our dog appreciates it; but Avery doesn’t care what he thinks. 😂

#oureveravery

Living life in an average toddler era, where every day’s an adventure, no matter how small. 🏔️

We recently decided it was time to take the gates off the stairs and see what Avery would do.

It was no surprise that she ran straight to them and crawled right up.

That was just a couple of weeks ago. It didn’t take her long to figured out how to WALK up them.🫣

We keep a close eye on her with each step and follow her up, while leading her down.

But, it’s a typical part of toddlerhood.

Conquering stairs. 💪

But for Avery, this—along with so many other milestones—was once a step we would never see.

So, do we still celebrate every little thing with her?

YOU BETCHA!

She has fought for every one, so we cheer them all. 🥳 

Keep going, Avi!

#oureveravery
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.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Living life in an average toddler era, where every day’s an adventure, no matter how small. 🏔️

We recently decided it was time to take the gates off the stairs and see what Avery would do.

It was no surprise that she ran straight to them and crawled right up.

That was just a couple of weeks ago. It didn’t take her long to figured out how to WALK up them.🫣

We keep a close eye on her with each step and follow her up, while leading her down.

But, it’s a typical part of toddlerhood.

Conquering stairs. 💪

But for Avery, this—along with so many other milestones—was once a step we would never see.

So, do we still celebrate every little thing with her?

YOU BETCHA!

She has fought for every one, so we cheer them all. 🥳

Keep going, Avi!

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

🐼 Midweek vibes: chasing bubbles, giggles galore, and endless adventures in the backyard with some of her favorite toys.

We especially enjoy seeing her and Ry on @maddysmemoriesfoundation Blue’s Clues bike.

It’s such a precious gift that was passed to the girls and we think of Maddy🎗️every time they ride it.

We love watching our curious girl conquer the backyard.

She’s come so far from simply “dipping her toes” into the grass.

Now she is fully engulfed in exploring every corner of the yard. 

👣Here’s to black trampoline feet, grass-stained knees, and the pure magic of childhood unfolding in our backyard!

#oureveravery

🐼 Midweek vibes: chasing bubbles, giggles galore, and endless adventures in the backyard with some of her favorite toys.

We especially enjoy seeing her and Ry on @maddysmemoriesfoundation Blue’s Clues bike.

It’s such a precious gift that was passed to the girls and we think of Maddy🎗️every time they ride it.

We love watching our curious girl conquer the backyard.

She’s come so far from simply “dipping her toes” into the grass.

Now she is fully engulfed in exploring every corner of the yard.

👣Here’s to black trampoline feet, grass-stained knees, and the pure magic of childhood unfolding in our backyard!

#oureveravery