Hi, Instagram friend! Welcome to our page dedicated to all of our lovely IG followers.

Below you will find the most asked for links and content that you’re looking for without scrolling all the way through our site!

Please use this email for digital gift cards and PayPal: [email protected]

Donating to Venmo? Please click here to go straight to Venmo or find @NKiernan on the app. It’s a picture of Dad (wearing a black shirt and hat holding Avery in his lap). Last 4 of phone number: 2823

Cancer Awareness Shirts
Purchase a shirt! All proceeds go towards Avery’s medical funds.
JOIN THE REGISTRY
SAVE A LIFE

JOIN THE REGISTRY!

Please consider saving a LIFE of someone from your heritage with 70 different blood disease like sickle cell or blood cancers like Leukemia.

Just click the button below or simply text everavery to 61474 to join as a committed new Be The Match member, if your age 18-44 and willing to help any patient in need.

BMT

Avery received her bone marrow transplant on October 15, 2021.


CAR-T

After donating 7 million of her own cells, she received CAR-T Therapy on April 19, 2021.


At Home

We cherish every moment of time we have to spend at home with our sweet girl.


✨LIFE’S WHAT YOU MAKE IT ✨ 

“Memories your making
You frame inside in your heart
The middle of a nowhere
Is a somewhere you can start

So go and write your song
The world will sing along

Oh-oh, oh-oh
Life’s what you make it
Oh-oh, oh-oh
It’s yours for the taking

Go and write your own song
All the world will sing along
When you find your melody
We’ll join in, in harmony”

Go and write your own song, Avi! 🎶 

You deserve the world. 💛

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #lifeswhatyoumakeit

✨LIFE’S WHAT YOU MAKE IT ✨

“Memories your making
You frame inside in your heart
The middle of a nowhere
Is a somewhere you can start

So go and write your song
The world will sing along

Oh-oh, oh-oh
Life’s what you make it
Oh-oh, oh-oh
It’s yours for the taking

Go and write your own song
All the world will sing along
When you find your melody
We’ll join in, in harmony”

Go and write your own song, Avi! 🎶

You deserve the world. 💛

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #lifeswhatyoumakeit

New favorite spot.🌳 

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything. 

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment

New favorite spot.🌳

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything.

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment

🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines. 

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery 
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#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial

🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines.

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery
.
.
#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial

💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.” 

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛 

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
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#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram

💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.”

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
.
.
#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram

My face when I realize the time 😮 (I blame the time change).

And, as we were talking about Avery’s facial expressions recently, how about this one?! 😂

She truly is quite the character.

Anyways, Avery had her bi-monthly clinic appointment today. She’s looking great!

All of her numbers are where they should be and her GVHD is staying under control.

In fact, she looked so good that her Dr decided it was time for another BIG milestone: vacc💉nes. 

[Please hold any opinions on 💉]

Because she was diagnosed at 7 weeks, she never began with the regular schedule.

Her doctor wants to start her on one at a time spread over a few weeks and then they’ll test to see if her body is holding the antibodies.

It’s a big test for her new immune system‼️

We’re confident it will work as expected. (Thanks, Gavin!)❤️

Also, she’s finally on the waiting list for speech therapy!

Helping her begin to talk (and eat more) will be another big milestone.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newimmunesystem #thankadonor

My face when I realize the time 😮 (I blame the time change).

And, as we were talking about Avery’s facial expressions recently, how about this one?! 😂

She truly is quite the character.

Anyways, Avery had her bi-monthly clinic appointment today. She’s looking great!

All of her numbers are where they should be and her GVHD is staying under control.

In fact, she looked so good that her Dr decided it was time for another BIG milestone: vacc💉nes.

[Please hold any opinions on 💉]

Because she was diagnosed at 7 weeks, she never began with the regular schedule.

Her doctor wants to start her on one at a time spread over a few weeks and then they’ll test to see if her body is holding the antibodies.

It’s a big test for her new immune system‼️

We’re confident it will work as expected. (Thanks, Gavin!)❤️

Also, she’s finally on the waiting list for speech therapy!

Helping her begin to talk (and eat more) will be another big milestone.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newimmunesystem #thankadonor

That face. 🥰

Someone asked us recently what we felt her developmental and cognitive age was.

Well, first, we can tell you that she very much acts like a two year old.

Her attitude and demands are full-blown toddler.🥴

You can also see her thinking through the details of EVERYTHING.

The area she lacks in are speech and eating. Still recovering from from the oral aversions post-BMT and NJ Tube.

Her next appointment is Wednesday and we’re going to ask about a referral for Speech Therapy, as well as OT.

(Her right foot curves inwards some, especially when she runs).

Hopefully we can start therapy for both soon.🤞🏼

So, when people ask this question, we put her around 18 months old developmentally.

But, she’s come so very far in the past year and we try our best to give her the tools she needs to learn and develop.

We can tell she’s trying her best to get out the words – hopefully a therapist can help pull them out of her!

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerhood

That face. 🥰

Someone asked us recently what we felt her developmental and cognitive age was.

Well, first, we can tell you that she very much acts like a two year old.

Her attitude and demands are full-blown toddler.🥴

You can also see her thinking through the details of EVERYTHING.

The area she lacks in are speech and eating. Still recovering from from the oral aversions post-BMT and NJ Tube.

Her next appointment is Wednesday and we’re going to ask about a referral for Speech Therapy, as well as OT.

(Her right foot curves inwards some, especially when she runs).

Hopefully we can start therapy for both soon.🤞🏼

So, when people ask this question, we put her around 18 months old developmentally.

But, she’s come so very far in the past year and we try our best to give her the tools she needs to learn and develop.

We can tell she’s trying her best to get out the words – hopefully a therapist can help pull them out of her!

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerhood

If you saw the last post, you’ll remember she learned how to go down the (inflatable ball pit) slide at home.

Today, she got some “real world” practice at the park and loved it even more!

We can’t wait to see how much fun she has this spring/summer once we can get her outdoors more.

Really hoping her GVHD stays under control/gone and we can spend more time outside with her since she loves it so much.😊

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlermilestones #slidingintotheweekend

If you saw the last post, you’ll remember she learned how to go down the (inflatable ball pit) slide at home.

Today, she got some “real world” practice at the park and loved it even more!

We can’t wait to see how much fun she has this spring/summer once we can get her outdoors more.

Really hoping her GVHD stays under control/gone and we can spend more time outside with her since she loves it so much.😊

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlermilestones #slidingintotheweekend

Someone finally figured out how to go down the slide by herself… and is very proud.🥰

PLUS, she said a new word yesterday: OUT!

Avery was done sitting in the high chair while we were at dinner and very clearly said, “Out!”

So, Mom stood up and got her out of the chair.🙌🏼

She’s also trying new foods this week AND has begun to drink regular milk (she has still been on toddler milk).

She is growing by leaps and bounds now and is just incredibly happy about it.

And we, of course, could not be more proud of her! 💛

Keep going, Avi! 💪

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #toddlermilestones #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

Someone finally figured out how to go down the slide by herself… and is very proud.🥰

PLUS, she said a new word yesterday: OUT!

Avery was done sitting in the high chair while we were at dinner and very clearly said, “Out!”

So, Mom stood up and got her out of the chair.🙌🏼

She’s also trying new foods this week AND has begun to drink regular milk (she has still been on toddler milk).

She is growing by leaps and bounds now and is just incredibly happy about it.

And we, of course, could not be more proud of her! 💛

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #toddlermilestones #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

How appropriate that she is wearing her “Stronger Than The Storm” shirt today.

This picture was taken while we were enjoying the weather before the storms came.⛈️🌪️

We’re having winds around 75-80mph and lots of rain. It’s one of the “nastiest wind events” we’ve seen in a long time.

But this kid? As we watch the radar and listen to storm chasers, she’s just running through the house playing.

Oh to have the innocence of a child.😌

Hoping we don’t get storms that are too damaging. Everyone stay safe out there!

👍🏼UPDATE: A bit of wind damage, but otherwise the storms weren’t too bad in our area.👍🏼

#oureveravery
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#dfwtx #texasstorms #strongerthanthestorm #bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

How appropriate that she is wearing her “Stronger Than The Storm” shirt today.

This picture was taken while we were enjoying the weather before the storms came.⛈️🌪️

We’re having winds around 75-80mph and lots of rain. It’s one of the “nastiest wind events” we’ve seen in a long time.

But this kid? As we watch the radar and listen to storm chasers, she’s just running through the house playing.

Oh to have the innocence of a child.😌

Hoping we don’t get storms that are too damaging. Everyone stay safe out there!

👍🏼UPDATE: A bit of wind damage, but otherwise the storms weren’t too bad in our area.👍🏼

#oureveravery
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.
#dfwtx #texasstorms #strongerthanthestorm #bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

"Sister is our first friend and second mother." – Sunny Gupta

Ry loves to care for Avery.

Avery loves to hug on Ry (and push her around to get her to move where Avi wants).

Together, we have no doubt they’ll be unstoppable. 💞

#oureveravery
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#sisters #sisterlylove #sisterstime  #sistersarethebest #sisterfun #sisterbondingtime #sistersarethebest #sistersrock #bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors

"Sister is our first friend and second mother." – Sunny Gupta

Ry loves to care for Avery.

Avery loves to hug on Ry (and push her around to get her to move where Avi wants).

Together, we have no doubt they’ll be unstoppable. 💞

#oureveravery
.
.
#sisters #sisterlylove #sisterstime #sistersarethebest #sisterfun #sisterbondingtime #sistersarethebest #sistersrock #bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors