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Our Happily Ever Avery
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Our Happily Ever Avery

Sample Category – Entertain

Candy canes tart muffin cupcake muffin jujubes carrot cake pudding lemon drops. Marshmallow dessert cookie sugar plum sweet roll lemon drops. Cotton candy jelly gummi bears cookie sweet roll cupcake.

Tablescaping for the flower challenged

Tablescaping for the flower challenged

The perfect Thanksgiving menu your guests will love

The perfect Thanksgiving menu your guests will love

Planning a gathering with your besties

Planning a gathering with your besties

The perfect salad for entertaining

The perfect salad for entertaining

Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
  • Additional Resources
  • How You Can Help
  • FAQs

ourhappilyeveravery

View

Mar 23

Open
New favorite spot.🌳 

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything. 

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment

New favorite spot.🌳

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything.

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment
...

ourhappilyeveravery

View

Mar 19

Open
🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines. 

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery 
.
.
#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial

🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines.

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery
.
.
#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial
...

ourhappilyeveravery

View

Mar 17

Open
💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.” 

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛 

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
.
.
#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram

💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.”

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
.
.
#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram
...

ourhappilyeveravery

View

Mar 16

Open
My face when I realize the time 😮 (I blame the time change).

And, as we were talking about Avery’s facial expressions recently, how about this one?! 😂

She truly is quite the character.

Anyways, Avery had her bi-monthly clinic appointment today. She’s looking great!

All of her numbers are where they should be and her GVHD is staying under control.

In fact, she looked so good that her Dr decided it was time for another BIG milestone: vacc💉nes. 

[Please hold any opinions on 💉]

Because she was diagnosed at 7 weeks, she never began with the regular schedule.

Her doctor wants to start her on one at a time spread over a few weeks and then they’ll test to see if her body is holding the antibodies.

It’s a big test for her new immune system‼️

We’re confident it will work as expected. (Thanks, Gavin!)❤️

Also, she’s finally on the waiting list for speech therapy!

Helping her begin to talk (and eat more) will be another big milestone.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newimmunesystem #thankadonor

My face when I realize the time 😮 (I blame the time change).

And, as we were talking about Avery’s facial expressions recently, how about this one?! 😂

She truly is quite the character.

Anyways, Avery had her bi-monthly clinic appointment today. She’s looking great!

All of her numbers are where they should be and her GVHD is staying under control.

In fact, she looked so good that her Dr decided it was time for another BIG milestone: vacc💉nes.

[Please hold any opinions on 💉]

Because she was diagnosed at 7 weeks, she never began with the regular schedule.

Her doctor wants to start her on one at a time spread over a few weeks and then they’ll test to see if her body is holding the antibodies.

It’s a big test for her new immune system‼️

We’re confident it will work as expected. (Thanks, Gavin!)❤️

Also, she’s finally on the waiting list for speech therapy!

Helping her begin to talk (and eat more) will be another big milestone.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newimmunesystem #thankadonor
...

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All proceeds go towards Avery's medical needs.

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Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
  • Remission
  • BMT {Rebirth Day}

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