What a great weekend we had with Avery!
Weโre so grateful we didnโt have to wait until today to get her REMISSION result! Last week took a lot out of us physically and emotionally.
But, we did get some good news todayโฆ
Remember how we mentioned someย โconcerning resultsโย last week?
Well, today we got back the second set of results, the far more accurate set, and it shows NO B-CELLS!
There appears to have been a data error (Averyโs CAR-T was very apologetic for the error even though he had no part in it) so this was such a relief to hear!
This means that the T-cells didย exactly asย they were trainedย to doย and didnโt have to completely exhaust themselves to do it.
Now, this next partโฆ they need to be sure about Averyโsย MRD:ย minimal residual disease.ย I explain more in the graphics.
Basically, the MRD will tell us what sort of chance she has for relapse AFTER bone marrow transplant.
Our job before BMT will get her MRD as low as possible. She will undergo bridging chemo as well as pre-transplant conditioning chemo.
The hope is both help bring her MRD way down in order to give her a greater chance at NOT having a relapse down the road.
So, thatโs where we are now. We have another appointment on Thursday with her Oncologist. Her entire care team will meet tomorrow and we should know more about our next steps soon.
REMINDER:ย Join the national registry at Be The Match by clicking this linkย https://join.bethematch.org/everAveryย or simply textย everaveryย to 61474
A FREE kit will be sent to you. Just mail it back ASAP.
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Finally, I know I keep asking, but if you’re not following Avery on IG you’re missing out! One of her latest Reels is about to hit 500K views! If you’re on IG look us up there: @ourhappilyeveravery
