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Our Happily Ever Avery
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Our Happily Ever Avery

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No Big Changes for This Weekend

No Big Changes for This Weekend

Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

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Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
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  • FAQs
🙌1 YEAR CANCER FREE🙌 One year ago today we 🙌1 YEAR CANCER FREE🙌 One year ago today we received the incredible news that Avery was (once again) in REMISSION! Bone Marrow Transplant was done to help give her the best chance at remaining cancer free. It’s been anything but easy for our sweet girl… but she’s doing it. That last video clip is from today. (she’s wearing one her aunt’s old swimsuits since it was an impromptu pool day) It was the first time we’ve ever seen her enjoy the water. And she could not stop laughing at Ry. To quote her Uncle from today’s family chat thread. “She’s so happy I’m gonna cry 😭 she deserves the world!!!!” Keep going, Avi! 🥹 #oureveravery . . #bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplantlife #morethan4 #tinysuperhero #childcancerwarriors #thisischildhoodcancer #childhoodcanceradvocate #fightlikeakid #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone
🙀OMG!!🙀 Mom just sent this to our family te 🙀OMG!!🙀 Mom just sent this to our family text thread! IT’S HAPPENING! Look at her go! We knew she had the ability, she’s just lacked the confidence. But looks like she’s getting it now. Go, sweet Avi, go! 🥹 #oureveravery . . #bonemarrowtransplant #bonemarrowtransplantrecipient #bonemarrow #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplantlife #sheswalking #toddlermilestones #babysteps👣
BMT DAY +292 Today was Avery’s monthly clinic d BMT DAY +292 Today was Avery’s monthly clinic day and it went great! All of her labs looked good and she do so well. Mom said Avery even smiled when they accessed her port. She’s never really cared about the poke; she just doesn’t like the cleaning portion of it all. Best of all, she was able to visit a handful of her favorite nurses!💛 She even let them hold her and was super sweet to them. We spent so much time inpatient with her wonderful BMT nurses that they became family. It’s always such a joy to see them. We still don’t have a set date for her port removal, but it should be getting close. They told us 2-3 months… and that was 2 months ago. Hopefully we’ll find out next month.🤞🏼 Here’s to continued good days. #oureveravery . . #bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplantlife #cancersurvivor
💛THAT SMILE💛 She absolutely loves her (1) @ 💛THAT SMILE💛 She absolutely loves her (1) @officiallittletikes trike and (2) being outside. We try to find pockets of “cooler” temps just before sunset to get her out there. And, as you can see, she absolutely LOVES it. It’s the little things that make her happy that bring us the greatest joy.🥰 This was a couple days ago, but you can see the GVHD as it’s starting to heal. You may recall, her skin thickens during a flare up and then flakes + peels as it begins to heal. After baths, as well as plenty of creams and lotions, it’s looking much better. #oureveravery . . #momentsofmine #littlestoriesofmylife #verilymoment #livethelittlethings #aquietstyle #thehappynow #darlingmovement #thatsdarling #flashesofdelight #seekthesimplicity #thatauthenticfeeling #inspiremyinstagram #nothingisordinary #nothingsordinary #bedeeplyrooted #findyourbliss #makemoments #livecolorfully #finditliveit #liveunscripted #toddlerplay #toddlerhood #toddlerlifestyle
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All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
    $25.00
  • The BRAVERIES
    The BRAVERIES
    $24.99
  • Mama to a Warrior shirt
    Mama to a Warrior Shirt / Childhood Cancer
    $24.99

How can you help?

If you'd like to know how you can help Avery and her family from home, please click here to find out the best ways to do so. Thank you!

Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
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  • BMT {Rebirth Day}

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