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Our Happily Ever Avery
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Our Happily Ever Avery

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No Big Changes for This Weekend

No Big Changes for This Weekend

Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
  • Additional Resources
  • How You Can Help
  • FAQs

ourhappilyeveravery

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Sep 21

Open
🎈HAPPY BIRTHDAY, MOM🎈 Time to make some wishes, mom. Happy cake day! Enjoy. 🎂 A Cancer Parent’s Poem: ⛈️ In life's storm, we stand so strong, Parents to a fighter, brave and small. Through trials and tears, we march along, In the darkest night, we give our all. 👶🏻 Tiny hands, a heart so pure, Yet cancer's shadow, we endure. Sleepless nights, but love endures, Our baby's courage, it reassures. 💛 Tribulations test our very core, But love and hope, we're fighting for. In unity, we'll heal and soar, Triumph's light, we'll embrace once more. 🌟So let this tale of strength resound, For parents with love, forever bound. In the face of fear, we'll stand our ground, With our baby's spirit, victory is found. #oureveravery . . #morethan4 #kidswithcancer #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #fightleukemia #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #parentofawarrior #parentingthroughcancer

🎈HAPPY BIRTHDAY, MOM🎈

Time to make some wishes, mom. Happy cake day! Enjoy. 🎂

A Cancer Parent’s Poem:

⛈️ In life`s storm, we stand so strong,
Parents to a fighter, brave and small.
Through trials and tears, we march along,
In the darkest night, we give our all.

👶🏻 Tiny hands, a heart so pure,
Yet cancer`s shadow, we endure.
Sleepless nights, but love endures,
Our baby`s courage, it reassures.

💛 Tribulations test our very core,
But love and hope, we`re fighting for.
In unity, we`ll heal and soar,
Triumph`s light, we`ll embrace once more.

🌟So let this tale of strength resound,
For parents with love, forever bound.
In the face of fear, we`ll stand our ground,
With our baby`s spirit, victory is found.

#oureveravery
.
.
#morethan4 #kidswithcancer #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #fightleukemia #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #parentofawarrior #parentingthroughcancer ...

ourhappilyeveravery

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Sep 21

Open
I turned around for ☝🏼second! It’s hard to say no to her sweet little face. At least we know she understands what they are, right?! I didn’t realize Papa had set them down and she was quick to notice he had! 👓 No glasses were harmed in the making of this content 🤓 🎗️🎗️DAY 20🎗️🎗️ Today we’re answering the top 3️⃣questions concerning childhood cancer. Flip through the slides to see what the most asked questions are — and the answers we found. As always, thank you for sharing and helping us bring awareness to childhood cancer. #oureveavery . . #morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss

I turned around for ☝🏼second!

It’s hard to say no to her sweet little face.

At least we know she understands what they are, right?!

I didn’t realize Papa had set them down and she was quick to notice he had!

👓 No glasses were harmed in the making of this content 🤓

🎗️🎗️DAY 20🎗️🎗️

Today we’re answering the top 3️⃣questions concerning childhood cancer.

Flip through the slides to see what the most asked questions are — and the answers we found.

As always, thank you for sharing and helping us bring awareness to childhood cancer.

#oureveavery
.
.
#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss ...

ourhappilyeveravery

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Sep 20

Open
“You have been assigned this mountain to show others it can be moved.” No one chooses cancer. Especially not when it’s a child. But, it’s what we choose to do with what we’ve been given that makes the difference. That’s what we’ve chosen to do with Avery’s story. To make a difference. To make an impact. To educate, empower, and advocate. We wish every day that this wasn’t a part of Avery’s journey, but we hope that by sharing we can help another family. Thanks to ALL OF YOU that keep encouraging us and reminding us why we share. 🎗️OUR CHILDREN DESERVE MORE THAN 4🎗️ #oureveravery . . #morethan4 #pediatriccancer #tinywarrior #pediatriccancerawareness #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancercommunity #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #fightlikeakid #leukemiasucks #leukemiaawareness #leukemialymphomasociety #leukemiawarrior #fightleukemia #childhoodleukemia #acutelymphoblasticleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #childhoodcancerawareness

“You have been assigned this mountain to show others it can be moved.”

No one chooses cancer.

Especially not when it’s a child.

But, it’s what we choose to do with what we’ve been given that makes the difference.

That’s what we’ve chosen to do with Avery’s story.

To make a difference.

To make an impact.

To educate, empower, and advocate.

We wish every day that this wasn’t a part of Avery’s journey, but we hope that by sharing we can help another family.

Thanks to ALL OF YOU that keep encouraging us and reminding us why we share.

🎗️OUR CHILDREN DESERVE MORE THAN 4🎗️

#oureveravery
.
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#morethan4 #pediatriccancer #tinywarrior #pediatriccancerawareness #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancercommunity #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #fightlikeakid #leukemiasucks #leukemiaawareness #leukemialymphomasociety #leukemiawarrior #fightleukemia #childhoodleukemia #acutelymphoblasticleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #childhoodcancerawareness ...

ourhappilyeveravery

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Sep 19

Open
First, I LOVE that she enjoys books. 📚 As an avid reader myself, it brings me great joy to see how much she loves books. 💇🏼‍♀️Second, we just gave her a haircut (her first) last month. It was just her bangs — and she didn’t make it easy — but you can see how long they’re getting again. This means her hair is just growing, growing, growing! 💁🏼‍♀️Again, hair doesn’t mean a lot in the full scheme of things, but it does have some significant meaning on a smaller scale. 🎗️🎗️DAY 18🎗️🎗️ (Oh! Avery’s 3️⃣rd birthday is 1️⃣ MONTH away!) Today’s #childhoodcancerawareness fact is that 2 out of 3 survivors will develop at least one chronic health condition. Emphasis on *at least one.” 💲Again, this goes back to the lack of research funding for childhood cancers. Most of the treatments our kids use were made for adults. Not to mention, many have focus side effects that cause long-lasting side effects. 📢Our children deserve MORE THAN 4% Keep advocating! #oureveravery . . #morethan4 #kidswithcancer #childhoodcancerawarenessmonth #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss

First, I LOVE that she enjoys books.

📚 As an avid reader myself, it brings me great joy to see how much she loves books.

💇🏼‍♀️Second, we just gave her a haircut (her first) last month.

It was just her bangs — and she didn’t make it easy — but you can see how long they’re getting again.

This means her hair is just growing, growing, growing!

💁🏼‍♀️Again, hair doesn’t mean a lot in the full scheme of things, but it does have some significant meaning on a smaller scale.

🎗️🎗️DAY 18🎗️🎗️

(Oh! Avery’s 3️⃣rd birthday is 1️⃣ MONTH away!)

Today’s #childhoodcancerawareness fact is that 2 out of 3 survivors will develop at least one chronic health condition.

Emphasis on *at least one.”

💲Again, this goes back to the lack of research funding for childhood cancers.

Most of the treatments our kids use were made for adults.

Not to mention, many have focus side effects that cause long-lasting side effects.

📢Our children deserve MORE THAN 4%

Keep advocating!

#oureveravery
.
.
#morethan4 #kidswithcancer #childhoodcancerawarenessmonth #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss ...

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Summary

  • Diagnosed
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  • Relapsed
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