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Our Happily Ever Avery
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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
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Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
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🛳️CRUISE • DAY 3🛳️ Unfiltered. Raw au 🛳️CRUISE • DAY 3🛳️

Unfiltered. Raw audio.

Just full on belly laughs with her aunts.

She’s been in the best mood and her belly laughs are the best!

#oureveravery
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#cancersurvivor #1stcruise #shedeservestheworld #babyneedsavacationtoo #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #posttransplantlife #royalcaribbean
🛳️ CRUISE • DAY 2 🛳️ Avery has really 🛳️ CRUISE • DAY 2 🛳️

Avery has really started enjoying bath time lately. So, it wasn’t a big surprise that she liked the splash pad onboard.

She played in here for over an hour.

Running. Sitting. Splashing. Laughing.

And for today’s big win?

Avery went to the nursery! It was just her and one other little guy; and she did great!

In fact, she didn’t want to leave!

We just weren’t sure how she would feel about it (and apprehensive about leaving her), but they said she had fun.

She danced and climbed. Watched her @supersimpleofficial songs! (The crew had no idea how much she loved them but soon found out)!

Overall, it was a good day. 💛

#oureveravery
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#cancersurvivor #1stcruise #babyneedsavacationtoo #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #posttransplantlife
7 months ago, Mom and I sat down and brainstormed 7 months ago, Mom and I sat down and brainstormed creative ways to spend celebrating Avery’s 1st Christmas home.

We thought she deserved an amazing holiday after everything she had endured.

Because we love to cruise (and it works best budget-wise for our big family), we booked a cruise.

We discovered the Christmas cruises were twice as much (if not more) than other times, so we booked for the last week of January.

This week. We just set sail an hour ago. 9 of us. Just missing Avery’s uncle.

We’re looking forward to a week of relaxation and sunshine.

Avery has been dancing and running around the ship.

She even met some other littles her size and was so excited. (She doesn’t see babies her size often).

We’re really hoping for some good times and core memories to be made on this trip.

We’ve been counting down for SO MANY days.

————————————-

An important note: Please keep our family in your thoughts and prayers over the next week.

Just after we boarded the ship we got a call about a young family member that passed away.

We’re absolutely heartbroken and hate that we can’t be with our family during this difficult time. 💔

#oureveravery
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#1stcruise #vacationmodeactivated #bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #fcancer #posttransplantlife #babyneedsavacationtoo #royalcaribbean
They’ve completely taken over our bedroom with a They’ve completely taken over our bedroom with all of their things…

But I’m not even mad about it.😉

Sleepover nights are mine and Papa’s favorite.

These two completely wear us out but in the best possible way.

Avery can just about match Ry’s energy (which is A LOT). 🫣

Playing with the both of them is the best.

And, if nothing else, it makes for a good night’s sleep – at least for some of us.

Happy Wednesday, Friends!

#oureveravery
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#sisters #sisterlylove #sisterslove #sistersarethebest #sisterfun #sisterbondingtime #sistersrock #grandchildren #grandchildlove #grandchildrenarethebest #grandparenting #grandparentslove #grandparentlife #grandparentingisthebest #grandparentshouse #grandparentsofinstagram #grandparentingisgrand #granddaughters #granddaughtersarethebest
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All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
    $25.00
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    The BRAVERIES
    $24.99
  • Mama to a Warrior shirt
    Mama to a Warrior Shirt / Childhood Cancer
    $24.99

How can you help?

If you'd like to know how you can help Avery and her family from home, please click here to find out the best ways to do so. Thank you!

Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
  • Remission
  • BMT {Rebirth Day}

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