CAR-T Therapy

Too Much Sleep Lands Her in the ER

Making the Best of the Situation

No Change with Hypoglycemic Episodes

Look Who Now Has Two Front Teeth

Latest Hospital Update | Her Poor Little Fingers

Breaking Down Thiopurines (6-TG)

Last Night’s ER Visit Became an Admittance

Preparing for Her Bridging Chemo Schedule

Trying to Lower Her MRD: Minimal Residual Disease

ourhappilyeveravery

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Mar 24

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✨LIFE’S WHAT YOU MAKE IT ✨

“Memories your making
You frame inside in your heart
The middle of a nowhere
Is a somewhere you can start

So go and write your song
The world will sing along

Oh-oh, oh-oh
Life’s what you make it
Oh-oh, oh-oh
It’s yours for the taking

Go and write your own song
All the world will sing along
When you find your melody
We’ll join in, in harmony”

Go and write your own song, Avi! 🎶

You deserve the world. 💛

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #lifeswhatyoumakeit ...

ourhappilyeveravery

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Mar 23

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New favorite spot.🌳

Avi and family were able to get all moved in on Monday.

Avery and Ry love the balcony. It’s just big enough to step out and get some fresh air.

Plus, it overlooks the park at the front of our subdivision. (That’s one of my favorite parts – how close they are!)

Now the fun part for Mom & I is working on organizing everything.

The dynamic of the apartment is much different than their last one and toy storage is going to be interesting. 😬

We’ve been all over Pinterest looking for inspiration and ideas.

Regardless, these two are enjoying their new home. 💛

Hope your week is going well too!

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newapartment ...

ourhappilyeveravery

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Mar 19

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🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines.

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery
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#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial ...

ourhappilyeveravery

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Mar 17

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💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.”

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
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#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram ...