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Our Happily Ever Avery
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Our Happily Ever Avery

CAR-T Therapy

Too Much Sleep Lands Her in the ER

Too Much Sleep Lands Her in the ER

Making the Best of the Situation

Making the Best of the Situation

No Change with Hypoglycemic Episodes

No Change with Hypoglycemic Episodes

Look Who Now Has Two Front Teeth

Look Who Now Has Two Front Teeth

Latest Hospital Update | Her Poor Little Fingers

Latest Hospital Update | Her Poor Little Fingers

Breaking Down Thiopurines (6-TG)

Breaking Down Thiopurines (6-TG)

Last Night’s ER Visit Became an Admittance

Last Night’s ER Visit Became an Admittance

Preparing for Her Bridging Chemo Schedule

Preparing for Her Bridging Chemo Schedule

Trying to Lower Her MRD: Minimal Residual Disease

Trying to Lower Her MRD: Minimal Residual Disease

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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
  • Additional Resources
  • How You Can Help
  • FAQs
🧠WORLD MENTAL HEALTH DAY🧠 Considering how m 🧠WORLD MENTAL HEALTH DAY🧠 Considering how much a cancer diagnosis can impact the mental health of not only the patient, but those around them, we feel as though this is a topic that should be talked about openly. A cancer diagnosis is essentially met with the stages of grief: 1. Denial 2. Anger 3. Bargaining 4. Depression 5. Acceptance Each person will obviously experience it in their own way and may differ. But, there's no doubt that hearing you (or a family member) can cause emotional distress. The most important thing we learned through Avery's journey is that we don't have to do it alone. It hasn't always been easy sharing Avery's story, especially when we were frightened we would lose her. But, there is some solace found in putting our thoughts down in a tangible form, hearing from others that (unfortunately) understand our pain, and to receive emotional support through our village. All of you! Therefore, this #WorldMentalHealthDay, we want to be sure to, once again, express our utmost gratitude to those of you that have—and continue to do so—lifted us up over the past 22 months. Our hearts are full.💛 Oh, and Avery? She discovered bubbles yesterday and loved popping them! She's been feeling well, had a fun, busy weekend, and we're can't wait to celebrate her TWO BIG MILESTONES soon❗ And last but not least, if you haven't watched our stories, we decided it was time to get Avery a dedicated mailbox. We've had many of you reach out for an address, so this makes it easier (and somewhat safer) on us. Yes, she can receive packages at the address. And, yes, so can Riley (for those who have asked about sending her something).💌 📬AVERY’S AUNT JACI WANTS TO MAKE A SCRAPBOOK FILLED WITH CARDS FROM HER FOLLOWERS SO PLEASE FEEL FREE TO SEND 🎂 🦃 🎄 OR ANY TIME CARDS📬 As always, THANK YOU for being here! #oureveravery . . #mentalhealthawareness #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiafighter #posttransplant #childhoodcancersucks #thisischildhoodcancer #childhoodcanceradvocate #cancerpickedthewrongkid #mentalhealthadvocate #mentalhealthday #mentalhealthisimportant
🎗️TEAM AVERY🎗️ Thanks to #childhoodcanc 🎗️TEAM AVERY🎗️ Thanks to #childhoodcancerawarenessmonth, plus a Reel that's getting a lot of views, we seem to have a lot of new followers.👋 Therefore, I thought it would be a good time to re-introduce our family. Of course, it's only natural to start with Avery.💛 Avery was diagnosed with High Risk Pre B-Cell Acute Lymphoblastic Leukemia at 7 weeks old. She went into remission after chemo round 1, only to relapse during round 3. She then had CAR-T Therapy on 4/19/2021, which helped her get NED (no evidence of disease), reaching remission again on 8/6. The hardest part of her journey, her Bone Marrow Transplant, took place on 10/15/2021. A look through our feed will show you how challenging it was... and continues to be (due to her Skin GVHD). We are now just 🔟 days from her 1st Rebirth Day and 1️⃣3️⃣ days from her 2nd Birthday! 🥳 (link to her wishlist in bio) Oh! Avery's favorite things: • swinging • outdoors • the color green • @supersimpleofficial Avery’s Mom and Dad are her main caregivers, as well as being every day "mom and dad." It’s through Mom’s attention to detail and incredible advocacy that Avery has continued to get proactive care. Big Sis (Riley) is Avery's best friend.💕 Papa and I (Ma) are Avery’s grandparents. We help care for Avery and Ry as often as needed, in addition to doing our grandparent spoiling duties as much as possible. I (Ma) also run all of Avery's social media accounts. If you're commenting or messaging, you're normally talking to me. 😉 Mom is the oldest of 5. Her brother is one of Avery’s namesakes, as well as her only uncle (currently). The 3 aunts enjoying playing with Avery and Ry whenever they get the chance! As a family, this, unfortunately, isn't our first "cancer rodeo." We lost my mom (Avery's great gma) to Lymphoma in 8/2017. We're incredibly grateful Avery's story has a been different and she is THRIVING today! Finally, we appreciate each of you for being here and always enjoy engaging with you.🥰 📸: @harperraephotography #oureveravery . . #bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #meetthefamily #noonefightsalone
BMT DAY +3️⃣5️⃣4️⃣ 11 days! How are w BMT DAY +3️⃣5️⃣4️⃣ 11 days! How are we this close?! If you’d like to send a gift for her 1st Rebirth Day &/or 2nd birthday, her wishlist link is in our bio. If you’d like to send a card, please DM for an address. 💌 As for Avery herself, well, as you can see here, she’s such a silly girl. But in the most serious way. How do I mean? She makes all these faces, stomps her foot(!), plays Peekaboo, and loves to throw things, but rarely changes her facial expressions. But, she also LOVES TO LAUGH and the greatest sound. 😍 Not to mention, her and Riley are building the closest relationship and is so endearing to watch. The bad? Her GVHD is flaring. Again. Last night was a rough one because she was itching so bad she couldn’t sleep well. Hopefully the doctors come up with a good plan soon. We’ve asked about other options; waiting to see what is next. Hoping she gets some relief soon because it’s miserable to watch her be so uncomfortable.🥺 Avery, as she always has, just keeps pressing forward. So here’s to better days ahead!✨ #oureveravery . . #bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #posttransplant #morethan4 #tinysuperhero #cancerwarrior #childhoodcancersucks #thisischildhoodcancer #childhoodcanceradvocate #childhoodleukemia #cancerpickedthewrongkid #ghvd #gvhdsucks
“I’m so glad I live in a world where there are “I’m so glad I live in a world where there are Octobers.” — L.M. Montgomery 🍂 I don’t think I’ve ever been so excited for October! Why you ask? We’re only 1️⃣4️⃣ days from Avery’s 1st Rebirth Day… And 1️⃣7️⃣ days from her 2nd Birthday! 🥳 Both are incredible milestones that, especially in November, we thought we would never see.🥺 We have so many reasons to celebrate our girl this month! She deserves all of it and so much more.💛 Want to help us celebrate her? We’ve added her WishList to our bio to make it easier to find. 🎁 We’re also trying to come up with a fun way to incorporate her IG community in her celebration. A LIVE perhaps? Any other ideas? We’d love to hear them! Oh, and we can’t forget one more of the most amazing things happening this month ▶️ we’ll be able to contact her donor‼️ It’s going to be a good month. #oureveravery . . #bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemiafighter #fcancer #frogyoucancer #posttransplant #childhoodcancerawareness #birthdaymonthbegins #bigthingscoming #octoberbaby
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All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
    $25.00
  • The BRAVERIES
    The BRAVERIES
    $24.99
  • Mama to a Warrior shirt
    Mama to a Warrior Shirt / Childhood Cancer
    $24.99

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If you'd like to know how you can help Avery and her family from home, please click here to find out the best ways to do so. Thank you!

Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
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  • BMT {Rebirth Day}

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