Nothing about transplant is easy. But this sweet baby is a mighty warrior! Thursday will bring anticipation, hope, stress, and gratefulness all at once.
Want to know the only word Avery has picked up signing so far? DONE. She is so over all of it. As soon as the nurses walk in the room, she puts both hands up and signs, “done.”
Avery started Anti-thymocyte globulin (ATG) which is supposed to help fight off GVHD (graft vs host disease) after her bone marrow transplant.
Chemo sucks no matter how you look at it. With babies, they have no way of communicating what hurts. Are they nauseous? Do they have a headache? Is it bone or joint pain?
And now the wait begins… again. Her Oncologist put in a rush order, but, unfortunately, some of these results take a few days to come in.
“Embrace uncertainty. Some of the most beautiful chapters in our lives won’t have a title until much later.” — Bob Goff
Her Bridging Chemo includes a daily oral medicine that triggers a “death switch” the cancer cells plus Vincristine, Dexamethasone, and PEG.
If everything goes the way we hope, today was Avery’s last chemo!! She’ll get her reprogrammed CAR T-cells infused on Tuesday.
We were hopeful we would get all results today. The only thing we can CONCLUSIVELY say at this point is that the results are inconclusive.