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Our Happily Ever Avery
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Our Happily Ever Avery

Diagnosis

It took a couple days for us to get an official diagnosis. Learn what initially raised alarms, the tests she had, and how we learned about her Pre B-cell Acute Lymphoblastic Leukemia.

One Year Post-Diagnosis

One Year Post-Diagnosis

10 Months Later: You’re a Warrior

10 Months Later: You’re a Warrior

Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant

Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant

Pre B-Cell ALL Notes

Pre B-Cell ALL Notes

First the Good News

First the Good News

3 Big Praises

3 Big Praises

Lumbar Puncture Expectations

Lumbar Puncture Expectations

PICC Line Plus Lumbar Puncture

PICC Line Plus Lumbar Puncture

White Blood Cell Counts Cut in Half

White Blood Cell Counts Cut in Half

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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
  • Chemo
  • Diagnosis
  • Happy News
  • Home Life

Resources + Info

  • Cancer Vocabulary
  • Types of Childhood Cancer
  • Symptoms of Childhood Cancer
  • Additional Resources
  • How You Can Help
  • FAQs

ourhappilyeveravery

View

May 23

Open
🪆PLAY SCHEMA🪆

You can always tell when Avery has been in a room. She leaves a line of toys everywhere she goes.

Sure, we know it can be a sign of autism 🧩, but did you know it can also be completely normal?

Thanks to some light reading, we also know that lining up toys is a natural part of development.

Plus, it’s a great way for toddlers to develop their motor skills. 

🎩 h/t to aheartforallstudents.com for the content shared

Whichever reason Avi does it, we love seeing her explore and play.

She enjoys her toys and keeping busy. 

She rarely sits still and we can always see her little brain 🧠 just working through the processes.

She babbles, laughs, yells, and dances as she plays.

Each day is a new adventure with her (and Ry).

They keep us on our toes and take every bit of energy we have to keep with them. 😂

But we wouldn’t want it any other way. 

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerplay #playschema #developmentalplay

🪆PLAY SCHEMA🪆

You can always tell when Avery has been in a room. She leaves a line of toys everywhere she goes.

Sure, we know it can be a sign of autism 🧩, but did you know it can also be completely normal?

Thanks to some light reading, we also know that lining up toys is a natural part of development.

Plus, it’s a great way for toddlers to develop their motor skills.

🎩 h/t to aheartforallstudents.com for the content shared

Whichever reason Avi does it, we love seeing her explore and play.

She enjoys her toys and keeping busy.

She rarely sits still and we can always see her little brain 🧠 just working through the processes.

She babbles, laughs, yells, and dances as she plays.

Each day is a new adventure with her (and Ry).

They keep us on our toes and take every bit of energy we have to keep with them. 😂

But we wouldn’t want it any other way.

Keep going, Avi! 💪

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerplay #playschema #developmentalplay
...

ourhappilyeveravery

View

May 22

Open
🎶And I got the wind in my hair and a song in my heart and the fun's only started
I got a skip in my step and I haven't a care
Colorful breeze blowing through
It's gonna carry me who knows where
And I'll take any dare
With the wind in my hair 🎶 
— Mandy Moore

Here’s to a great week ahead! 🥰

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors 
#windinmyhair #windinmyhairdontcare

🎶And I got the wind in my hair and a song in my heart and the fun`s only started
I got a skip in my step and I haven`t a care
Colorful breeze blowing through
It`s gonna carry me who knows where
And I`ll take any dare
With the wind in my hair 🎶
— Mandy Moore

Here’s to a great week ahead! 🥰

#oureveravery
.
.
#bonemarrowtransplant #bethematch #savealife #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors
#windinmyhair #windinmyhairdontcare
...

ourhappilyeveravery

View

May 19

Open
2 sisters.

1 light-filled hallway.

They both love playing in this hallway as the sun begins to set. ☀️ 

———————————-

“A sister is a gift to the heart, a friend to the spirit, a golden thread to the meaning of life.”—Isadora James

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #sisters #sisterlylove #sistersister #sistersforlife #sistersarethebest #sistersarethebest #sistersareforever

2 sisters.

1 light-filled hallway.

They both love playing in this hallway as the sun begins to set. ☀️

———————————-

“A sister is a gift to the heart, a friend to the spirit, a golden thread to the meaning of life.”—Isadora James

#oureveravery
.
.
#bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #sisters #sisterlylove #sistersister #sistersforlife #sistersarethebest #sistersarethebest #sistersareforever
...

ourhappilyeveravery

View

May 18

Open
🫧 B U B B L E S 🫧 

Yep, we’re back playing with bubbles today.

Why? Because we’re all back together. Uncle Wyatt is home! 🙌🏼

Papa is cooking 🍔 and 🌭 on the grill and we’re just enjoying each other’s company.

It’s been a hectic couple of weeks, but we’re seeing the light at the end of the tunnel.

I wish we could all be as innocent (and oblivious) as sweet Avery some days, but grateful for all of the support you have all given us.

We’re working our way back to some normalcy around here. 💚

#oureveravery
.
.
#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #bubblepopping #lovebubbles

🫧 B U B B L E S 🫧

Yep, we’re back playing with bubbles today.

Why? Because we’re all back together. Uncle Wyatt is home! 🙌🏼

Papa is cooking 🍔 and 🌭 on the grill and we’re just enjoying each other’s company.

It’s been a hectic couple of weeks, but we’re seeing the light at the end of the tunnel.

I wish we could all be as innocent (and oblivious) as sweet Avery some days, but grateful for all of the support you have all given us.

We’re working our way back to some normalcy around here. 💚

#oureveravery
.
.
#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #bubblepopping #lovebubbles
...

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All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
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Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
  • Remission
  • BMT {Rebirth Day}

Resources

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