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Our Happily Ever Avery

Diagnosis

One Year Post-Diagnosis
Diagnosis

One Year Post-Diagnosis

December 16, 2020. The day our world changed forever. We had no idea how our lives would change just 24 hours later.

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10 Months Later: You’re a Warrior
Diagnosis

10 Months Later: You’re a Warrior

10 months ago today we received the devastating news of Avery’s diagnosis. Avery is so strong. The bravest little girl And she’s not done yet.

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Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant
Diagnosis

Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant

On Wednesday, December 16, we received devastating news. Our sweet baby was diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia.

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Pre B-Cell ALL Notes
Diagnosis

Pre B-Cell ALL Notes

The Doctor (head Oncologist in ICU) came in to give some specific results (Mom was with us so we listened in), these are the notes I took.

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First the Good News
Diagnosis

First the Good News

Avery’s hemoglobin is 11.7 (aiming for the teens) and her WBC is 18,000 (aiming for under 10K). Platelets are still a little low (no number given), but not concerning.

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3 Big Praises
Diagnosis

3 Big Praises

CT Scan came back clear! They said her brain looks beautiful. Her heart is good and her lungs are clear.

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Lumbar Puncture Expectations
Diagnosis

Lumbar Puncture Expectations

The oncologist still can’t confirm the type because the lab doesn’t have those results yet. She also told them they fully expect to see some of the leukemia in Avery’s spinal cord.

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PICC Line Plus Lumbar Puncture
Diagnosis

PICC Line Plus Lumbar Puncture

Just talked to Mom, she said the ICU team is encouraged by Avery’s numbers so far. They seem to be reacting well to the platelets. They’ll do another lab soon to update those numbers.

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White Blood Cell Counts Cut in Half
Diagnosis

White Blood Cell Counts Cut in Half

Hemoglobin is now 7.1 (started at 4 – normal is in teens, low is 9-10). WBC is now 80,000 (started at 175,000 – normal is 0-10,000).

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