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Our Happily Ever Avery
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Our Happily Ever Avery

Diagnosis

It took a couple days for us to get an official diagnosis. Learn what initially raised alarms, the tests she had, and how we learned about her Pre B-cell Acute Lymphoblastic Leukemia.

One Year Post-Diagnosis

One Year Post-Diagnosis

10 Months Later: You’re a Warrior

10 Months Later: You’re a Warrior

Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant

Diagnosis: Pre B-Cell Acute Lymphoblastic Leukemia in Infant

Pre B-Cell ALL Notes

Pre B-Cell ALL Notes

First the Good News

First the Good News

3 Big Praises

3 Big Praises

Lumbar Puncture Expectations

Lumbar Puncture Expectations

PICC Line Plus Lumbar Puncture

PICC Line Plus Lumbar Puncture

White Blood Cell Counts Cut in Half

White Blood Cell Counts Cut in Half

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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

  • Bone Marrow Transplant
  • CAR-T Therapy
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🛳️CRUISE • DAY 4🛳️ Look at that preci 🛳️CRUISE • DAY 4🛳️ Look at that precious smile. She loves looking at the water. These windows scared her a bit because they lean and you can definitely feel like you’re falling over. Not to mention, it’s been a windy ride, so we can all feel the movement of the ship quite a bit. Avery seems to be doing well though, and the rocking may even be helping her sleep straight through the night! Tomorrow is another port day, so we’ll see how well that goes for her. She slept most of the day during our first time off the ship! As long as she’s enjoying her vacation, that’s all we care about.😊 #oureveravery . . #cancersurvivor #1stcruise #shedeservestheworld #babyneedsavacationtoo #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #posttransplantlife #royalcaribbean
🛳️CRUISE • DAY 3🛳️ Unfiltered. Raw au 🛳️CRUISE • DAY 3🛳️ Unfiltered. Raw audio. Just full on belly laughs with her aunts. She’s been in the best mood and her belly laughs are the best! #oureveravery . . #cancersurvivor #1stcruise #shedeservestheworld #babyneedsavacationtoo #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #posttransplantlife #royalcaribbean
🛳️ CRUISE • DAY 2 🛳️ Avery has really 🛳️ CRUISE • DAY 2 🛳️ Avery has really started enjoying bath time lately. So, it wasn’t a big surprise that she liked the splash pad onboard. She played in here for over an hour. Running. Sitting. Splashing. Laughing. And for today’s big win? Avery went to the nursery! It was just her and one other little guy; and she did great! In fact, she didn’t want to leave! We just weren’t sure how she would feel about it (and apprehensive about leaving her), but they said she had fun. She danced and climbed. Watched her @supersimpleofficial songs! (The crew had no idea how much she loved them but soon found out)! Overall, it was a good day. 💛 #oureveravery . . #cancersurvivor #1stcruise #babyneedsavacationtoo #bonemarrowtransplant #bonemarrowtransplantrecipient #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #posttransplantlife
7 months ago, Mom and I sat down and brainstormed 7 months ago, Mom and I sat down and brainstormed creative ways to spend celebrating Avery’s 1st Christmas home. We thought she deserved an amazing holiday after everything she had endured. Because we love to cruise (and it works best budget-wise for our big family), we booked a cruise. We discovered the Christmas cruises were twice as much (if not more) than other times, so we booked for the last week of January. This week. We just set sail an hour ago. 9 of us. Just missing Avery’s uncle. We’re looking forward to a week of relaxation and sunshine. Avery has been dancing and running around the ship. She even met some other littles her size and was so excited. (She doesn’t see babies her size often). We’re really hoping for some good times and core memories to be made on this trip. We’ve been counting down for SO MANY days. ————————————- An important note: Please keep our family in your thoughts and prayers over the next week. Just after we boarded the ship we got a call about a young family member that passed away. We’re absolutely heartbroken and hate that we can’t be with our family during this difficult time. 💔 #oureveravery . . #1stcruise #vacationmodeactivated #bonemarrowtransplant #childhoodcancer #babiesgetcancertoo #leukemiawarrior #leukemiafighter #fcancer #posttransplantlife #babyneedsavacationtoo #royalcaribbean
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Grab Some Merch!

All proceeds go towards Avery's medical needs.

  • Worth More than 4
    Worth More Than 4
    $25.00
  • The BRAVERIES
    The BRAVERIES
    $24.99
  • Mama to a Warrior shirt
    Mama to a Warrior Shirt / Childhood Cancer
    $24.99

How can you help?

If you'd like to know how you can help Avery and her family from home, please click here to find out the best ways to do so. Thank you!

Our Happily Ever Avery
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Summary

  • Diagnosed
  • Remission
  • Relapsed
  • CAR-T Therapy
  • Remission
  • BMT {Rebirth Day}

Resources

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