When we say this girl has FIGHT in her, we truly mean it. Here is this morning’s update from ICU; simply full or more big wins for our girl!
The big news of the day was platelets! We hope this means platelet engraftment is coming as it’s the last one. Plus, post-procedure updates.
This girl! We told them she was strong. She had a laundry list of BIG WINS today and is definitely heading in the right direction.
When I say we fought ICU, we FOUGHT. For 2 hours we asked every question, went through every scenario, and called in every advocate we had.
PRES presents with rapid onset of symptoms including headache, seizures, altered consciousness, and visual disturbance
Her liver numbers are up a bit, but she had 2 wet diapers overnight and 2 more today! But, they’ve all been ON HER OWN!
After sleeping most of the day, Avery woke up ready to dance! With her stick in hand, and without a care about her respiration, she danced.
In a compromise with the care team, we put her back on a low dose of the sedative with the promise we’d stop it first thing in the morning.
Avery had a tough night due to dropping O2 stats. In fact, when the Drs came in this morning, they had every intent of sending her to ICU.