This silly grin basically represents how our day has been.
Her hemoglobin has continued to hold steady.
Itโs dropping a little with each draw, but this is expected with BMT on a normal basis.
We had a slight scare today when the GI Specialist, letโs call him Dr. T from now on, came in and sat down on the couch.
He looked a bit concerned and said he was discouraged by her last dirty diaper.
Papa and I werenโt sure what the concern was because it looked normal.
So we asked if he saw the picture we had ICU take of the diaper. He had not.
As soon as he saw the picture, he was very excited and told us to forget everything he had said previously, Avery is still doing great!
Weโre taking picture of every stool diaper to make sure nothing is lost in communication and he can keep a watchful eye on her gutโฆ from the outside.
Otherwise, Avery has continued to return a little bit more to โherself.โ
Sheโs signing โDONEโ again, saying, โmamaโ, pulling up to standingโฆ just progressing so well!
Weโre cautiously optimistic, and encouraged each day with her progress.
Oh, and early this evening we made it back to BMT.
Weโve had a great day and itโs been really good for our spirits to see her โdoing her thingโ again.
Itโs been a while since weโve seen her look this good!
Final note:
Her skin GVHD (graft vs host disease) is a bit flared up today on her face and neck, so we started another topical steroid cream to try to contain it.
Overall though? Our sweet girl had a great day!
Questions about moving? Check last nightโs second update.
