i’m avery and i’m so grateful you’re here!
On Wednesday, December 16, we received devastating news. Our sweet baby was diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia. Cancer. At 2 months. This is her healing journey.
Life at Home
Avery spent most of the first year of her life in the hospital. After bone marrow transplant, she was discharged and is currently home. She is cancer-free and doing her best to adjust to what life should be for a toddler. These Instagram posts represent those days at home.
Every child deserves a chance to fight.
Together, we can make a difference in the battle against childhood cancer.🎗️
The fight for these children and their families doesn’t stop when the calendar flips to a new month.
Whether it’s donating, volunteering, or simply sharing information, your support can help bring hope to families facing this heartbreaking diagnosis. ❤️🩹
Every action, no matter how small, can contribute to the cause.
Let’s come together as a community and support families affected by this devastating disease.
Together, we can make a difference and show these brave kids that they’re not alone.💛
#oureveravery
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#morethan4 #pediatriccancer #childhoodcancerawareness #kidswithcancer #gogold #childhoodcancersucks #childhoodcancerwarrior #cancercommunity #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiawarrior #childhoodleukemia #cancerpickedthewrongkid #noonefightsalone #showyourgold
As we near the end of Childhood Cancer Awareness Month, today’s post is about how Avery is doing now.
In fact, we had two big moments with her speech today.
Most of what Avery says is a repeat of her songs. Otherwise, it’s “sounds” we don’t quite understand yet.
The first big moment came today while at the zoo.
We were going to take the girls on a little train 🚂 and were waiting for our turn.
I carried Avery over to watch the train and was talking to her about it.
Next thing I know, she put her little hand in a fist, and pulled her hand down so as to make a pumping motion. 💪🏻
Then, she said, “CHOO CHOO TRAIN!”
I’m not kidding when I say I walked back over to the others carrying Avery in my arms with happy tears in my eyes. 🥹
This is the first time she’s ever really used expressive language like this.
The second time would happen just this evening.
I was washing Avery’s hands in the sink and she clearly didn’t want to do it anymore.
I told her I was done and began to dry her hands. 🤚🏼
Y’all. She looked me straight in the eyes and said, “Sad.”
Mom and I were both in complete shock! 😮
Avery then looked at me again and said, “I sad. Sad. Sad.” Then laid her head down on my shoulder.
In addition to absolutely breaking my heart for making her sad, 💔 I was so amazed at how well she’s doing with her speech!
Survivorship itself is a journey. We have highs and lows, but when we hit those highs?! THEY ARE SO GOOD! 🙌🏼
We can’t wait to update y’all with even more words, phrases, and developments as we continue to move forward.
So very proud of our sweet girl! 🫶🏼
#oureveravery
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#bonemarrowtransplant #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #posttransplantlife #cancersurvivor #cancercrushers #childhoodcancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerfree #beatcancerlikeaboss #cancersurvivors #expressivespeech #speechdelay
📸 January 2024 📸
As a family, we celebrating survivorship every single day!
Avery fought for nearly 2 years to give herself a lifetime of memories, and we cherish each milestone, no matter how small.💛
As we prepare to celebrate her 3rd re-birthday and her 4th birthday🎈just weeks away, we’re reminded of her strength, resilience, and the endless joy she brings.
Every moment with her is a victory, and we’re so grateful to share it with you all.🎗️
Keep going, Avi!
#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife ##cancercrushers #childhoodcancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #developmentalmilestones #rebirthday
“Just when the caterpillar thought the world was over, it became a butterfly.” — Chuang Tzu🦋
Three years ago, Avery reached complete remission—meaning there’s no longer any detectable cancer in her body! 🎉
But in the world of childhood cancer, ‘cured’ means something different.
It’s when a child has been in “complete remission” for five years without relapse.
While Avery is thriving in remission, we look forward to the day we can call her “cured.” 💛
Her journey is one of brAVERY, determination, and endurance.
Let’s keep raising awareness for all the warriors out there! 🎗️
#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #childhoodcancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors
Childhood Cancer Resources
There is help available!
Whether your child has been diagnosed with cancer, or you’re simply looking for ways to educate yourself and get involved.
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Worth More Than 4$25.00 -
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BMT DAY +164
This wean is one of the last big hurdles for her to jump over in order to just “be a toddler.” Just keep swinging, Avi!
BMT DAY +160
Avery woke up throwing up at 4am and hasn’t been in a great mood all day. She didn’t nap well and has been itching quite a bit.
Helpful Terms
It’s okay, we’re learning together!
We all know that navigating cancer comes with a learning curve. We’ve put together a list of Leukemia vernacular to help as we continue through Avery’s journey.