i’m avery and i’m so grateful you’re here!
On Wednesday, December 16, we received devastating news. Our sweet baby was diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia. Cancer. At 2 months. This is her healing journey.
Life at Home
Avery spent most of the first year of her life in the hospital. After bone marrow transplant, she was discharged and is currently home. She is cancer-free and doing her best to adjust to what life should be for a toddler. These Instagram posts represent those days at home.
When she won’t let you “really” put her hair up, so you do what you can.
💇🏼♀️ We’ll have to try to cut her hair soon.
🎗️🎗️DAY 23🎗️🎗️
The most common childhood cancers are Leukemia, Brain & Spinal Cord Tumors, Neuroblastoma, Lymphoma, Rhadomyosarcoma, Retinoblastoma, and Bone Cancer.
Read through the slides to find some of the most common symptoms each.
The sole reason for concern with Avery was a swollen lymph node.
🙌🏼It was Mom’s attention to detail that helped us catch Avery’s cancer.
Sometimes it truly pays to trust your gut.
#oureveravery
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#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss
Another 👓 picture because I think she’s just the cutest.
Her sweet face.
Her hair flips.
All of it.
🤓 (I seriously have a whole series of these because she was too cute with Papa’s glasses)
🎗️🎗️DAY 22🎗️🎗️
I know you’re probably tired of the numbers, but we’re in the home stretch.
🎤 I want to make sure we share as many as possible while we have the proverbial mic this month.
Keep sharing!
Keep advocating!
💛And, as always, THANK YOU for simply caring.
#oureveravery
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#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss
🎈HAPPY BIRTHDAY, MOM🎈
Time to make some wishes, mom. Happy cake day! Enjoy. 🎂
A Cancer Parent’s Poem:
⛈️ In life`s storm, we stand so strong,
Parents to a fighter, brave and small.
Through trials and tears, we march along,
In the darkest night, we give our all.
👶🏻 Tiny hands, a heart so pure,
Yet cancer`s shadow, we endure.
Sleepless nights, but love endures,
Our baby`s courage, it reassures.
💛 Tribulations test our very core,
But love and hope, we`re fighting for.
In unity, we`ll heal and soar,
Triumph`s light, we`ll embrace once more.
🌟So let this tale of strength resound,
For parents with love, forever bound.
In the face of fear, we`ll stand our ground,
With our baby`s spirit, victory is found.
#oureveravery
.
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#morethan4 #kidswithcancer #cancerwarrior #childhoodcancersucks #childcancerwarriors #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #fightleukemia #childhoodleukemia #cancerpickedthewrongkid #iflovecouldcurecancer #noonefightsalone #parentofawarrior #parentingthroughcancer
I turned around for ☝🏼second!
It’s hard to say no to her sweet little face.
At least we know she understands what they are, right?!
I didn’t realize Papa had set them down and she was quick to notice he had!
👓 No glasses were harmed in the making of this content 🤓
🎗️🎗️DAY 20🎗️🎗️
Today we’re answering the top 3️⃣questions concerning childhood cancer.
Flip through the slides to see what the most asked questions are — and the answers we found.
As always, thank you for sharing and helping us bring awareness to childhood cancer.
#oureveavery
.
.
#morethan4 #kidswithcancer #gogold #cancerwarrior #childhoodcancersucks #childhoodcancerwarrior #cancersucks #thisischildhoodcancer #kidsgetcancertoo #babiesgetcancertoo #childhoodcanceradvocate #leukemiasucks #leukemiaawareness #leukemiawarrior #cancelbloodcancer #childhoodleukemia #allleukemia #cancerpickedthewrongkid #bonemarrowtransplant #childhoodcancer #infantileleukemia #leukemiafighter #posttransplantlife #cancersurvivor #cancerawareness #survivorstories #survivorjourney #beatcancerlikeaboss
Childhood Cancer Resources
There is help available!
Whether your child has been diagnosed with cancer, or you’re simply looking for ways to educate yourself and get involved.
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BMT DAY +164
This wean is one of the last big hurdles for her to jump over in order to just “be a toddler.” Just keep swinging, Avi!
BMT DAY +160
Avery woke up throwing up at 4am and hasn’t been in a great mood all day. She didn’t nap well and has been itching quite a bit.
Helpful Terms
It’s okay, we’re learning together!
We all know that navigating cancer comes with a learning curve. We’ve put together a list of Leukemia vernacular to help as we continue through Avery’s journey.