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Our Happily Ever Avery
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Our Happily Ever Avery

Happy News

Cancer doesn’t rule every part of Avery’s life. We refuse to let it. This is a collection of our favorite just “good days.”

BMT DAY +162

BMT DAY +162

BMT DAY +156

BMT DAY +156

BMT DAY +154 | Happy 17 Months, Avi!

BMT DAY +154 | Happy 17 Months, Avi!

BMT DAY +145

BMT DAY +145

BMT DAY +144 | International Women’s Day

BMT DAY +144 | International Women’s Day

BMT DAY +142

BMT DAY +142

BMT DAY +139

BMT DAY +139

BMT DAY +134

BMT DAY +134

BMT DAY +129

BMT DAY +129

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Our Ever Avery
Oh hey! I'm Avery!

I can’t exactly say I’m happy to be here, or that I’m delighted that we’re meeting this way. BUT, I can say THANK YOU for all of your love and support in this journey.

Quick Summary of My Journey:

  • Diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia on 12/16/2020 at the age of 7 weeks
  • Remission achieved on 1/24/2021
  • Relapsed on 4/5
  • CAR-T Therapy on 4/19
  • Remission achieved again on 8/6
  • BMT on 10/15/2021 {Rebirth Day}

Follow our hashtag: #oureveravery

Blog and Social Media run by “Ma” (grandma) with Mom overseeing information

How you can help from home

Categories

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  • CAR-T Therapy
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Resources + Info

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  • Types of Childhood Cancer
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BMT DAY +304 Avery says, “Hello!” 👋🏼 BMT DAY +304

Avery says, “Hello!” 👋🏼 

She is walking all over now; but still crawls when she wants to hurry it up.

She’s getting much better and gaining more confidence each day.

It’s hard to believe we’re just over 8 weeks from DAY +365.

Seeing how far she’s come gives us the encouragement and drive to continue moving forward. 

To keep having hope.

Avery never ceases to amaze us.

May we all have a terrific week ahead! 💛

#oureveravery
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#bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplantlife #childhoodcancer #survivingtothriving
BMT DAY +302 Another pool day here. Give Avery a BMT DAY +302

Another pool day here. Give Avery a 🟢 ball and some trees to watch and she’s good.

Speaking of giving, we attended an event today and saw a @carterbloodcare mobile unit there.

Unfortunately, some of us are anemic, so we told Papa he should donate blood.

And he did so cheerfully. ☺️

We’re not only grateful for Carter BloodCare because of their work with blood donations, but they are also the team that did Avery’s bone marrow transplant!

Because the donor’s blood type was different from Avery’s, it had to be put through an extensive separation process prior to transfusion. 

This was done at Carter BloodCare before they brought the cells to the hospital.

Plus, over the course of the last 20 months, Avery has been given countless blood products. 

All of these helped to save her life and would not be possible without donors.

To all of you that donate blood🩸 , share blood drive information, or volunteer your time to the cause…

THANK YOU! ❤️

 #oureveravery
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#giveforlife #donateblood #donatebloodsavelives #donatebloodsavelife #donatebloodtoday #carterbloodcare #bonemarrowtransplant #bonemarrowtransplantrecipient #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplantlife
BMT DAY +3️⃣0️⃣0️⃣ "The greater the o BMT DAY +3️⃣0️⃣0️⃣

"The greater the obstacle, the more glory in overcoming it." - Moliere

The things this girl has been through. Not just in the past 300 days, but since diagnosis.

603 days.

But she’s doing it. And she’s so happy about it!

She’s really testing her confidence and strength of her legs nowadays. Walking everywhere.

Not fully. But definitely getting there.

And we’re starting to see so many smiles! Truly, that’s one of the best parts. ☺️

Celebrating her today as we also remember her great grandma.

We lost her to Lymphoma 5 years ago today. 

She fought for over 7 years and was awaiting her Bone Marrow Transplant (my aunt’s cells had already been harvested), but never got well enough for the transplant.

Walking this familiar journey with Avery has been traumatic on multiple levels as it brought up many memories of that walk as well.

Therefore, seeing Avery doing so well, making it this far, and continuing to thrive is such an incredible feat for us.

We believe her great grandma is her guardian angel and she would be so proud of Avery.

I know we are. 💛💛💛

#oureveravery
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#bonemarrowtransplant #bonemarrowtransplantrecipient #bonemarrow #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplant #posttransplantlife #heavenversary
BMT DAY +299 Getting her to sit is becoming more BMT DAY +299

Getting her to sit is becoming more of a challenge.

But that’s a good thing. ☺️

Now that she knows how to walk (even though not fully doing so), she much prefers to just stand.

So, no chair for dinner tonight. We could only get her to eat while standing.

More peas, 🥕carrots, and rice. 

Also… I can’t believe tomorrow will be DAY +3️⃣0️⃣0️⃣‼️

#oureveravery
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#bonemarrowtransplant #bonemarrowtransplantrecipient #bonemarrow #bethematch #childhoodcancer #infantileleukemia #babiesgetcancertoo #babieswithcancer #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #byebyebadblood #fcancer #frogyoucancer #posttransplant #posttransplantlife #lookwhoswalking
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Our Happily Ever Avery
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Summary

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