Happy News

Cancer doesn’t rule every part of Avery’s life. We refuse to let it. This is a collection of our favorite just “good days.”

BMT DAY +154 | Happy 17 Months, Avi!

BMT DAY +144 | International Women’s Day

🙃This is MY Happy Face Book!🙃

Anyone who knows Avery knows how much she LOVES @supersimpleofficial songs.❤️

They got her through every day of chemo and bone marrow transplant.

And they STILL help soothe her every day. Still make her happy when she has a sad moment.

So, when I saw that they had this board book I HAD to order it for her.

It came today and I was so excited to give it to her.

As I expected, she loves it! 🥰

What I was not ready for was her attitude towards anyone that came near it. 😂

She has been flipping through it most of the day. Using it as a teepee ⛺️ over her little character figurines.

Carrying it from room to room.

But, when I tried to look at it with her at one point today, she gave me one of her “looks” (seen on the cover photo of this Reel), shut the book, and put her hand on it to keep it closed.

She then gave me a side eye 😒 until I walked completely away from her and the book.

So… it’s HER book and she is not up for sharing it right now.

Okay, Avi. It’s all yours, sweet girl. Enjoy it.💛

#oureveravery
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#bonemarrowtransplant #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #supersimplesongs #supersimple #supersimpleofficial ...

ourhappilyeveravery

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Mar 17

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💜M E G A F A N S💜 (AD)

If you’ve been around a while, you may recall that Avery had two @warmies_usa that helped her through chemo and BMT.

First, her pink elephant 🐘, Ellie, was incredibly helpful as she fought through the body aches of chemo.

Then, her Golden Dog Warmies Wrap helped to keep her calm and cozy during her BMT.

Therefore, when Warmies reached out to partner with us, it was the perfect fit!

Now, not only does Avery has a new cozy plush, but Ry has one too!

To help Avery through her newest chapter, we chose a Goose because it matches her nickname: “Avi Goose.”

And for Ry? A purple hippo! Her favorite color + favorite animal.🦛

And well, as you can see, they loved the surprise!

Warmies are microwaveable plush toys that are filled with flaxseed and a “hint of Lavender flowers” to create a soft and calming stuffed friend.💙

BIG thank you to Warmies for partnering with us!

#oureveravery
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#bonemarrowtransplantsurvivor #bonemarrowtransplantrecipient #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemiasucks #leukemiafighter #fcancer #frogyoucancer #posttransplantlife #warmies #warmieslove #stuffedanimalsofinstagram ...

ourhappilyeveravery

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Mar 16

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My face when I realize the time 😮 (I blame the time change).

And, as we were talking about Avery’s facial expressions recently, how about this one?! 😂

She truly is quite the character.

Anyways, Avery had her bi-monthly clinic appointment today. She’s looking great!

All of her numbers are where they should be and her GVHD is staying under control.

In fact, she looked so good that her Dr decided it was time for another BIG milestone: vacc💉nes.

[Please hold any opinions on 💉]

Because she was diagnosed at 7 weeks, she never began with the regular schedule.

Her doctor wants to start her on one at a time spread over a few weeks and then they’ll test to see if her body is holding the antibodies.

It’s a big test for her new immune system‼️

We’re confident it will work as expected. (Thanks, Gavin!)❤️

Also, she’s finally on the waiting list for speech therapy!

Helping her begin to talk (and eat more) will be another big milestone.

Keep going, Avi! 💪

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #newimmunesystem #thankadonor ...

ourhappilyeveravery

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Mar 14

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That face. 🥰

Someone asked us recently what we felt her developmental and cognitive age was.

Well, first, we can tell you that she very much acts like a two year old.

Her attitude and demands are full-blown toddler.🥴

You can also see her thinking through the details of EVERYTHING.

The area she lacks in are speech and eating. Still recovering from from the oral aversions post-BMT and NJ Tube.

Her next appointment is Wednesday and we’re going to ask about a referral for Speech Therapy, as well as OT.

(Her right foot curves inwards some, especially when she runs).

Hopefully we can start therapy for both soon.🤞🏼

So, when people ask this question, we put her around 18 months old developmentally.

But, she’s come so very far in the past year and we try our best to give her the tools she needs to learn and develop.

We can tell she’s trying her best to get out the words – hopefully a therapist can help pull them out of her!

#oureveravery
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#bonemarrowtransplant #bethematch #savealife #childhoodcancer #infantileleukemia #babiesgetcancertoo #leukemiawarrior #leukemialymphomasociety #leukemiasucks #leukemiafighter #frogyoucancer #posttransplantlife #cancersurvivor #cancercrushers #cancerawareness #thrivingnotsurviving #survivorstories #survivorjourney #cancerwarrior #cancerfree #beatcancerlikeaboss #cancersurvivors #toddlerhood ...