Because I know everyone will notice and askโฆ
The nose cannula is simply because she was intubated while under anesthesia today, so itโs precautionary.
She should be weaned off before bedtime.
As for her GI scope today, I think it went just as we suspected.
First, there was a decent size hole in her stomach that seems to be the main source of her bleeding.
They cleaned and packed it to see if that helps it stop bleeding so it can heal.
We asked if the NG Tube could have caused it and were told yes.
This is why weโve continued to advocate AGAINST the tube and will keep doing so as her stomach heals.
Sheโs taking her oral meds fine and we believe sheโll take feedings orally if given the opportunity.
Next, they found several small spots of fragile tissue coupled with an โangryโ stomach and bowel.
This is pretty textbook for GVHD in the gut (both upper and lower); which we also suspected.
We may have to wait for the biopsy results to confirm, but will be starting steroids to help that issue.
We asked our NP if sheโs checked off enough โside effect boxesโ yet so we can go home.
It seems sheโs getting a lot of them; even eczema.
Fortunately, she just keeps pushing through them.
ICYMI: today marks one year since her diagnosis, and we were able to turn it into something good.
Thanks to all of you that donated to our toy drive, we were able to deliver almost 250 toys/gifts to the hospital today for kids whoโll be inpatient this Christmas.
THANK YOU ALL for your donations, as well as your support throughout Averyโs journey.
There are definitely days where we couldnโt do it without all of your encouragement and love.