Hospital Policy
Afternoon update:
- Blood counts are stable.
- Doesnโt need meds for uric acid right now.
- Lowered IV fluids to normal range since her fluid output is doing good.
- Heart ECHO tomorrow to get a base line before starting โbig meds.โ
- Expect WBC to go to zero around 7 days after starting big meds. Stay zero until after meds stop. Give it a week to build back up and then bone marrow biopsy to look for leukemia cells in newly generated cells.
- TERM TO KNOW:ย Absolute neutrophil countย (ANC) โ less than 500 means youโre at risk for infection (currently at 1,000-1,800)
The hospital staff has decided they can both stay through next Monday, then they could only allow one of them in the room.
Current hospital policy, due to COVID, only allows one parent.
Theyโre trying to balance the delicacy of having anย infant with cancerย (the youngest on the floor) and being fair and safe for the other patients.
Mom & Dad are trying to find a way to stay somewhere close so they can trade off easier, plus be able to see Big Sister more often.
If anyone has any connections or ideas for a place near Childrenโs Hospital Dallas, weโd love to hear about them.
(Theyโre already looking intoย Ronald McDonald House. COVID restrictions have changed things there as well).
